disaster relief – Composite

Hunkering down

March 14, 2020 Liz

As we go deeper into social distancing, I have some thoughts to share.

Danny and I both tend to read the whole internets (usually while we should be sleeping) and keep our finger on the pulse of things so it is interesting to compare notes with him about the rapidly changing situation and responses and theories and all that.

It’s been touching to see people “reaching out” to me as a possibly vulnerable person. Often folks who I have known online a while and who are worrying about me b/c I am disabled. Thanks friends. (I am fine and have a lot of social support and also sufficient money.) I also got a pneumovax shot yesterday to potentially decrease a bit of risk of getting extra lung infections on top of COVID-19. Danny started working from home (partly to protect me which I appreciated more than I realized I would once he said it).

I had some plans to go circulate letters to neighbors offering mutual aid but I find that I’m just a bit exhausted emotionally. I might do it next week. Instead, right now, I am donating cash to the Disability Culture Club (Venmo to @DJCultureClub) and am hosting a Stardew Valley group game for kids/teenagers/anyone stressed (with the Unlimited Players mod). Hosting a small online space and making it hospitable and building out a game Discord channel is something I can do, and all the kids are out of school for weeks if not months, so why not. Gaming is now my activism, lol?

Here’s more about the DJCC:

Are you a disabled person or elder in the [SF/Oakland] East Bay needing extra support during COVID19, maybe because you can’t risk exposure on public transit, your attendant called out, etc? Please share your needs with us at https://tinyurl.com/DJCCsupportform so we can try to assist. Please know we are prioritizing BIPOC, will be triaging needs, and can’t make promises (grocery stores are sold out of a lot and we are disabled volunteers of color doing mutual aid, not the Red Cross!)

If you are an ally wanting to offer support, the best way is to Venmo us at @DJCultureClub to pay for hand sanitizer, masks, gas, caregiver pay, protective gear, groceries, and to fund ongoing mutual aid projects like this. We also very much need local abled volunteers who are not in contact with those at risk to provide support. Please complete our ally form here: https://tinyurl.com/DJCCally

The job hunt continues, and all the places that interviewed me and then said “we’d love to hire you but we can’t accommodate remote work” then went the very next freaking week (or two) into their entire company going remote. I should go back to them and say they should reconsider since I’m an expert in doing tech work from home — as I’ve done it successfully for two decades.

A lot of disabled people are having that sort of feeling of half resentment, half hope (or some other proportion, maybe it’s more 90/10 or 99/1!) at society’s ability to suddenly bend and adapt and change its structures NOW, for everyone, when they wouldn’t a week ago, for us. Or, are expressing some level of eye rolling as people go stir crazy after 2 days staying at home. Hi, welcome to a lot of our realities (me and other people who have had long periods “home-bound”). Oh, it feels so sad that you can’t go to that event you had tickets for and were looking forward to for months? Yeah I know. (Also skimming over the obvious horribleness of people hoarding stuff that for some disabled/ill people are necessary daily survival supplies, like alcohol wipes, etc but let’s move on for now…)

I can’t stay in that feeling for long, and what you should try to do to move out of it and let go of the bitter or resentful feelings, is realize we have many coping skills to share. Just like you, an experienced disabled or chronically ill person, would do to mentor a newbie, (Like we do all the time!) here is where your experience comes into play, and your having gone deep into these feelings and emerged again, becomes somewhere that you shine. That can sound too much like “we exist to teach the abled a lesson” but that isn’t it — because they’re not going to necessarily stay in able-landia, the world is changing for at least the medium term, and millions of people recovering from severe pneumonia isn’t going to result in millions of able healthy not-chronically ill people. They will need us, for solidarity and to know how to live well and we will need their mass political support even if it is new and based on their own new needs. (I’m thinking free universal health care here.)

That said, hi, I’m actually a bit scared, knowing we’re all going to get this sooner or later, and having had a lot of respiratory illnesses, I’m scared of having a worse one, because it’s scary and hurts and you feel super anxious not breathing well, and it would be a heinous way to die and I don’t want to die. However, if I do, not to be morbid, at least I have the comfort that I have had a really great life.

NERT graduation and a couple of hours in dressing rooms

February 15, 2019 Liz

Got my certificate, hard hat, vest, gloves, and ID card signifying that I have gone through Neighborhood Emergency Response Team training. Tonight was fun – it was all exercises like doing a search & rescue and triage, setting off a fire extinguisher (in the street, on a gasoline fire in a big metal box) and rescuing a CPR doll trapped under a pile of debris by shoring up a plank and levering it off her.

I also did a bunch of stuff for Firefox 66 beta 8 and then went shopping with a friend in the late afternoon, had a blast taking her to my favorite mens consignment shop then to a thrift shop on Market where there was a VERY drunk blonde lady (size 4) trying on pants while my friend was trying on shirts in the dressing room next door and I was just chilling out on a bench. Blond lady would come out and strut around and shake her butt in my face “These pants are totallly sexy they’re a yes! don’t you think!” I would agree and she would go “HOTTTTTT” and I’d go “yes, totally HOTTTTTTTT with TTTTTTTTTT on it” And then alternately admire or mildly disparage the fit of the button down shirts on my friend. Then at one glorious point the drunk femmy lady came out in a punky jacket, rejected it, but intersected with my friend and was like NO… YOU need this… this would look GREAT on you. And it did! High fives all around. She kept coming out of her little cubbyhole only in underwear to see what my friend had on next.

Very entertaining! I was really feeling like a fabulous fairy godless-being and very knowledgeable about pocket squares and so on. Super reminded of this, the best thread: https://twitter.com/trans_tho/status/999924229624639488

Still not really a real post

February 8, 2019 Liz

Because I am very tired. Worked all day, hung out with my mom which was awesome, then went to NERT training class #5 which was also fun as we did disaster simulation exercises where we filled out FORMS, which i fucking loved, then walked home via Rock Bar which has delicious strong cocktails, and had a drink and a half and talked about 1 million things, now quite tipsy, also grateful to my past self for making a huge pot of chicken congee 2 days ago and how nice warm rice porridge is, just like Noah’s amazing plan for an artisanal porridge restaurant called GRUEL where people would pay 16 bucks for a wooden trencher of oats, rice, groats, or whatever, then more leaping several levels of nested conversations deep with Danny and so to bed. Did you know that in class 5 of 6 of the NERT training they ask you to sign a loyalty oath!?!!!!! I think that’s strange and wrong. Some of us had to text Seth. Others of us are a particular sort of pragmatist. Dammit, we forgot the free glass which was so beautiful, for Fort Point IPA. Danny is the best person to have conversations with, ever.

NERT Herding

January 18, 2019 Liz

Off soon to class #2 of NERT training. San Francisco has Neighborhood Emergency Response Teams, with free 6 week classes where you learn about disaster response & then graduate with, I don’t know, a certificate and a hard hat. Then first responders can call on local teams if they need backup in disaster situations. Though, I think the main idea is to encourage people to be more prepared for earthquakes, fires, whatever, I’m sure local crews are also useful in a pinch!

I appreciate the accessibility of the class locations!

The website has a bunch of the NERT class materials, including PDFs of the class handbook and a disaster preparedness checklist in English, Spanish, and Chinese. I’m thinking of printing some of those checklists, laminating them, and putting them up in my free bookshelf on the sidewalk.

Hurricane relief: Do something!

November 1, 2012 Liz

Aleja and I met online through GimpGirl years ago. I got to know Nick as well; we chat often about space exploration, writing, and comics. We have mutual friends like Jen Cole and Ron Sidell. We met in person in New York finally! Both at the BlogHer conference and then over Thanksgiving while I was in town for the Committee to Protect Journalists fundraiser.

On Monday I was asking Aleja and Nick if they had anyone with them. Akemi had come over to stay with them through the hurricane but they did not expect at all to lose power and water. I was on vacation in Mexico. My electric mobility scooter had broken, so I had limited ability to go places and was spending a lot of time online following the news and writing to friends.

From my work during and after Hurricane Katrina I know how fast situations can deteriorate and how important logistics are. Simply having people on the spot is amazingly useful. Once they are there, they can see what needs doing. I offered to reach out on my social networks to see if anyone near them might be able to come over and help out. At that point I began to realize the complexity of what support they might need, as well as many of the pressures against asking for help.

Personally, I have a ton of support and resources, yet it only takes a little change in my circumstances to unbalance the whole house of cards. When my needs change, or become more visible, other people sometimes then begin to treat me like I’ve crossed a line into complete loss of control of what happens. I didn’t want that to happen to Nick, as it so often does, and for him with life threatening consequences. And for Aleja who I love dearly I could picture how outsiders would not be able to see the level of work she does and how necessary it is. We value our independence, including our ability to plan and ask for help. But for me personally that comes with a confusing mix of pride and shame, fear and anger, for the times things don’t go as I had planned and predicted. I struggle with this. People are very, very disrespectful and I don’t like to be dehumanized. But to get along and survive, sometimes we have to just eat disrespect. For Nick and Aleja, crossing that line could mean someone would try to force Nick to evacuate without real infrastructure in place to support them and his health care, and his breathing. (And in fact, that just happened. TWICE.) Being evac-ed could kill him, but even if it didn’t, would it result in some bureaucrat or social worker deciding he should be incarcerated — forced into an institution? Would it disrupt their lives to the point where Nick and Aleja wouldn’t be able to come home together? (They already can’t get married.) When I’m casually dehumanized I lose a little dignity and I get mad. When Nick is, his life is on the line. William Peace describes the dangers of the medical model of disability very well in his blog Bad Cripple, which I recommend highly.

In this photo Aleja and I express our feelings about oppression and ableism by flipping them off with a smile:

Anyway, I worried that I was pressuring Aleja to consent to my sending in some stranger (though a friend of a friend) into their home whether to help with personal care or just to bring them food and water or try and find a way to get power to Nick’s breathing equipment. As soon as they said it was okay, I put out a call. It propagated quickly. Suddenly thousands of people were twittering to me or messaging me on Facebook. I was frantically trying to apologize to Aleja over IM for embarrassing them since my twittered request for help went way out of control. Over the next few hours it became apparent that a support network would have to mobilize. And it did! Three out of the thousands were able to offer practical help rather than just saying “Call 911! Call FEMA” (yeah right!!!), and they joined what was quickly organizing to be a team effort from people who hadn’t known each other before. I was glued to my computer talking with people, gathering information from many sources and redistributing it to others, trying to spare Alejandra’s and others’ limited cell phone batteries. Len Burns became my point of contact with Aleja. They needed sterile water, rides for their nursing/PCA staff because the subway was not running, cash for all sorts of things, drinking water, batteries for flashlights, and many more things that had to be brought up and down 12 flights of stairs. Leslie Freeman was the first to get there, I think, other than Akemi. They are both beyond awesome! My friend Lauren who is a journalist and feminist activist also made it there.

Then I began following Crystal and Sandi Yu’s epic road trip in the middle of the night driving from Boston to New York City, stopping at every Walmart, AutoZone, and truck stop on the way to get supplies. When I realized Crystal is also a wheelchair user and that she and Sandi had barely met, I was cheering them on so hard and felt a deep happiness to find these kindred spirits doing something I could at least support from a distance. I donated quickly over PayPal and Crystal was able to use the money right away with a PayPal debit card. Meanwhile, Amalle was coordinating an ever growing Google Doc of information about how to help and exactly what to do. There was a schedule of people volunteering for shifts and to drive Nick’s nurses back and forth from home to work.

Crystal and others also began, at some point, getting money from Portlight — where I am also now donating! Carrie Ann Lucas connected the group to Portlight. I really like getting cash directly to people in a crisis and to “unofficial first responders”, as I will never forget the amazingness of handing wads of 20 dollar bills (given to me by strangers who read my blog) directly into the hands of evacuees in the Houston Astrodome so they could get to their families, buy diapers and gas, and get the heck out of that refugee camp. Aside from the help…. they were fueled by trust. No fuss, no forms, no proving things to people behind desks, just direct practical help.

I love Crystal’s quick and detailed writeup of the history of how she became involved and what she and Sandi did, from Crystal’s blog LittleFreeRadical: UnconVENTional Aid: Helping Nick Dupree, Social Networking Style. I would love to hear the stories of others like Leslie and Amalle and Akemi who are doing so much as well as what this has been like for Aleja and Nick. It is important not to lose our history.

On Wednesday I started doing research on legal issues for Len Burns, to see what options existed for protecting Nick against other people’s non-helpful 911 calls on him, and discussed battery tech and power inverters with other people active in the efforts. At some point Tuesday or Wednesday I Facebook-friended and began talking with Leslie and then Crystal and others working to help; I could see their comments on Aleja and Nick’s and Len’s posts. Now I’m happy to know them and can tell we have a lot in common — our willingness to jump into a situation and improvise, for one! And I understood Bethany Stephens‘ use of the word “cripfam” a bit more deeply because I felt that recognition of friends who will go all out, who know what “solidarity” means…

Meanwhile this happened: Invalid New Yorker’s Pals Keep Life Saving Gear Running. While I can see the effort this reporter made to be helpful, the disrespectful language and the way the story frames Nick and Aleja both made me furious and sick to my stomach. The reporter couldn’t even be bothered to get a quote from Nick but described his very act of speaking as “burbling” etc, in ways that are classically dehumanizing… as non-speech, as non-human, as alien other. I can see reporters will think this an interesting story — and it is, but not like this, not this easy win at Disability Reporting Bingo. Most of the people helping here are also people with disabilities, for example. There are stories to tell about technology, the Internet, hardware, proprietary medical tech, the connections to OccupyWallStreet and activism, and many other complexities. I wrote to the reporter and his editor, and commented (mildly, for me, and without swearing) on the story.

My main usefulness has been to bring attention to the situation and get others involved. People pay attention to my thoughts on this because of my history of public speaking, and blogging; my involvement with hackerspaces, DIY technology, and activism; and because I did some useful on-the-spot work for Hurricane Katrina relief. I also was able to donate money directly to Crystal and to Portlight. Please pitch in if you can, to share resources and skills, because the situation over the East Coast and NYC in general is still deteriorating as gasoline and supplies run out across the area.

Here’s how to help right now: Lending a Hand

Big organizations like FEMA and the Red Cross do useful work, but usually not at this stage of chaos on this individual level. A week and a half from now they’ll be in charge whether they’re effective or not, but right now it’s anarchy, so we have a chance to be the most useful with direct action. Just go…right now while it’s crucial… go to wherever the problem is, LISTEN TO PEOPLE… and pitch in. Don’t just donate some old clothes or cans of food as if you can dump your trash on other people and it will magically make them middle class and give them all the infrastructure of your massive privilege! Go to gather information, find out what is needed, improvise, and DO SOME WORK.

The Mississippi and the Atchafalaya

May 12, 2011 Liz

Looks like the Army Corps of Engineers is planning to open the Morganza Spillway this weekend. Here’s a map of the areas projected to flood in Louisiana if the Morganza is opened completely:

I just read John McPhee’s Control of Nature which has a long section about the levees and dams on the Mississippi including the Old River Control Structure. I remember around 1981 I had this book called Dark Gator: Villain of the Atchafalaya that I got from a friend in junior high in Houston. It had this amateurish home-grown quality to it that I loved and I went off to look up “Atchafalaya” in the encyclopedia because I liked the way the word sounded. It blew my mind that there was a whole other giant river that was sort of but not quite part of the Mississippi. I think at the time my dad also explained about Cajuns and Acadians which he had read about in Francis Parkman, because of the book and because I had another friend who liked to boast about being a “Cajun coonass”.

I always think of her and of the Dark Gator comic book when I read about the floods – and I get the song Tupelo by John Lee Hooker stuck in my head.

The levee was already breached near New Madrid, flooding a huge area of farmland to save the town of Cairo and drop the crest levels further down river.

The Mississippi may change course to run primarily into the Atchafalaya basin rather than through New Orleans, and they’re opening the Morganza Spillway to try and prevent the Old River Control Structure from blowing out, which sounds like the highest risk of the river being captured by a new drainage area.

I get fascinated with the technical details of riverways and dams, and the infrastructure necessary to keep everything as it is. It’s haunting me to think of all the people displaced right now and others who may not have evacuated from the flood plains at risk.