Free Idea: Use ChaCha's structure for disaster relief

On the drive up to Seattle a few weeks ago, Cindy and Sarah Dopp and I were playing with ChaCha and wondering how they make money. Around here we all go “What’s your business model” right away… and then snicker.

So I think I might just have figured it out. Do it for free for a bit with your VC money and show how it works. Then, sell “Enterprise ChaCha” or something like it, to a big institution. (I was looking at Indiana University‘s page about it.) You’d sell the structure and the setup, and the institution creates its own number (and password or validation system) and pools its own experts. So, sell it to Exxon or something for its corporate librarians and geologists. Or to the military, obviously. Here is the military’s answer to its perpetual search for AI. “Human assisted search”.

Anyway, this could also work for disaster relief, because it’s ideal for situations that change very rapidly. I was looking at Jon’s empty wiki and thinking, well aside from all the problems with the whole idea of that, which I won’t go into, might a Twitter feed be better? I thought of myself on the 2nd floor of the Astrodome after Katrina, gathering and putting out information that was extremely up to date, and how quickly things changed on the ground. Would I want a wiki for it? (I tried. It is hopeless without a core of people already trained to use one and to work together with one.) Maybe I wouldn’t want one. Maybe a feed would be better. Page back through the “2nd floor astrodome” Twitter feed and see what’s up. Combine many different channels of all the people at various stations in the Astrodome and you’d know who says what is true, right in the moment.

But even better — a private setup for a ChaCha-like thing. You get 100 people together to monitor and answer questions and you would have an instant backup, fit for the general of an army. Or fit for a reporter on the ground in a rough situation. I think of how I combed google news all day long for the Back to Iraq guy back in like 2003 and emailed him updates on whatever was going on or being bombed in the area near him. How much better, if he could have called a phone number like ChaCha’s, and tapped into a network of people like me. Someone would have texted him back the information he wanted within minutes. And if there were sort of a combination of Ning and ChaCha, you’d be able to set up your own information broker network and invite people to join it.

The Red Cross should be using this (okay, maybe in 20 years if they can get it together that fast). But, I offer the idea up to whatever nonprofits or disaster relief workers can use it.

WordPress plugin idea – blikify

So I was at Recent Changes Camp this weekend talking smack about blikis with some people. And I told anyone who would listen about the plugins for WordPress that help you integrate your blog with Mediawiki or other wikis.

What about a plugin that would just let you designate any page or post as world-editable?

Add Markdown and your WordPress blog could be easily wikified. I could use this for my nascent Hack Ability blog, and it would make me (and readers, and other editors) a lot happier than setting up and maintaining a whole parallel wiki structure to go with the blog.

On #wordpress I was just talking with _ck_ who wrote a Wiki Post plugin for bbPress.

_ck_ also pointed me to this cool and hilarious video of andiacts and Selena discussing when to use Drupal and when to use WordPress:


“It’s so cool! It’s like a new solar system!” That made me laugh so hard.

I have never written a WP Plugin but this seems possibly within the scope of my coding ability. So maybe this summer I’ll give it a shot.

But, if anyone out there wants to write it, go ahead, take the idea and run. Just hat tip me when you do. And, I would be motivated to help and contribute, because it would be handy as hell.

Ubuntu "Girlfriend Experiment" PHAIL

Ugh… I really get pissed at the basic idea of “we can see how usable Ubuntu is by testing it on our girlfriends.” Assumption: “We” are male; “our” girlfriends are ignorant of technical matters. And are stupid. Femininity here is equated with non-technical status. This is not only untrue, it is a really poisonous idea to spread.

http://contentconsumer.com/2008/04/27/is-ubuntu-useable-enough-for-my-girlfriend/

First task: Tell me what the capital of Bosnia is. Second task: watch a video on YouTube Third task: Download a Spice Girls album.

Uhhh WTF with the Spice Girls? Care to infantalize women’s use on the internet any more?

How about finding some RECIPES too?

All of this just yanks my chain big time, like when people say in talks and demos, “It’s so easy, my MOM can do it.” (And then everyone in the audience laughs knowingly.) Like moms are the dumbest people ever. My pet peeve at technical conferences. I am a mom!

I am also a girlfriend!

I am also technically competent and don’t enjoy condescension!

Test Linux on your ignorant dad, next time, or your poker buddy. Be sure to have him download crap about the Backstreet Boys and other overly gendered BS.

Hundreds of women on the linuxchix mailing list are rolling their eyes in unison.

WAIT I’m so confused, maybe if they made the Ubuntu background pink?!?

DIY: Access Hacks project

For the second year in a row, I thought of the wheelchair modification and disability access projects that could and should be at Maker Faire. I’d like to make that happen next year.

At Maker Faire this year, I talked with Miguel Valenzuela, who was showing Lift Assist, a toilet lift device that can be built for $150 out of bits of PVC and junk from a hardware store, powered hydraulically from your own water system. That kind of thing costs thousands of dollars if you buy it as a medical device. If it were a DIY kit, and if it had open source plans and instructions up on the web, it could be useful to thousands of people all over the world.

So I got to thinking. Who would I even hook Miguel up with, to get his plans used? What other projects are spreading disability access devices, open source? Could things like this just be given over to an organization like Engineers Without Borders? How can they be open sourced or copylefted? Who’s collecting that information? Certainly not the U.N. committees on disability – ha!

There are specific projects like Whirlwind Wheelchair International and its design for the Rough Rider chair, developed by Ralf Hotchkiss and students over many years and meant to be distributed to shops or factories or organizations in developing nations. In other words, partnership with actual manufacturers. There’s the Free Wheelchair Mission which has a kit to build wheelchairs for under $50. They seem to take donations and then ship a giant crate of wheelchair kits to somewhere in the world. Those both look great. But neither of them were for a disabled person who might want to build their own stuff.

Then I found some nifty sites like Marty’s Gearability blog, which has a DIY category for “Life with limitations and the gear that makes things work”. She has made dozens of posts on modifications she’s made for her dad, who uses a wheelchair. I especially enjoyed the how-to for a wheelchair cup holder and the elegant, blindingly useful offset hinges to widen doorways.

I’m also somewhat familiar with Adafruit Industries and its projects like SpokePOV. What if assistive devices used something closer to this model? Rather than people patenting, and trying to sell their designs to a medical supply company, which marks it up a million times until disabled people in the U.S. can’t afford them unless they have insurance or can wait 5 years and fight a legal battle with Medicare.

I found organizations like Remap in the UK, that takes applications from individual disabled people, and hooks them up with an engineer who will build them a custom device. This I think exemplifies the well meaning but ill advised attempts to help disabled people through a “charity” model rather than through widespread empowerment. If an engineer is donating time and an invention, why not have them write up and donate the plans for whatever they are building, and post the DIY instructions for free? Then, thousands of people all over the world could build that invention for themselves.

Here’s another data-sucking black hole of information that should be out there on the beautiful, wild, free internet: academia. This paper on bamboo wheelchair designs is probably super great, but who knows? Only the libraries who have the bound copy of the conference proceedings of the 5th international bamboo conference back in 2002. This makes me very, very sad. OneSwitch, on the other hand, has the right idea. It’s a compendium of DIY electronics projects to build assistive devices. Perfect!

Meanwhile, I went looking for the latest news in open source hardware. What’s up with the Open Source Hardware License?

My own inventions for assistive devices have tended towards the creative yet slapdash use of duct tape. For example, my Duct Tape Crutch Pockets, an idea easily adaptable to small pouches for forearm crutches and canes, or to get more storage space onto your wheelchair.

My own canes and crutches that fold (with internal bungee cords) could use simple velcro closure straps to keep them folded up while they’re in my backpack or in the car. There are some ingenious ways, also, to attach canes or crutches to a wheelchair.

I have thought of, but not made, ways to extend storage space further. For example, I think that the lack of pockets in women’s clothing is a political issue. Women’s clothes are mostly designed without pockets, because of cultural pressure to look skinny, so women end up encumbered by bags and purses. If you think about how wheelchairs are made, it is interesting that they are assumed not to need storage space, cup holders, things like that. People hang little backpacks off their chairs. And there are a few custom made pouches for walkers, crutches, and wheelchairs, like this thin armrest pouch. You won’t find them in an actual wheelchair store – and rarely in a drugstore or medical supply house. Why not?

As wheelchair designs continue to evolve, I hope that manufacturers will create customizable backs and sides and seats. Nylon webbing with d-rings, sewn into the backs and under the seats of wheelchairs, would mean that custom pouches and packs could clip onto a chair. Then it would be easy to set up your chair with interchangeable bits. My laptop could go in a pouch under the seat, for example, so that it wouldn’t affect my center of gravity so drastically as it hangs off the seat back in a backpack.

I’d like to see more and more mods for chairs and canes and crutches that are just for fun. The little holes in adjustable-height, hollow metal walking canes — don’t they seem like the perfect size to stick an LED light in there?

Also, meanwhile, I had posted briefly the other day for Blogging Against Disablism Day 2008 with a list of ideas for Practical actions that will help, like smoothing out steps into a small business (ie just freaking pour some asphalt in there or build a wooden wedge even if it is not exactly to code; people do nothing, for fear of being sued, rather than spend thousands to do a to-code ramp, and I’d rather they just stuff in a slope and bolt a rail to the wall than do nothing!). After I made the list, I went looking for online instructions on how to do the things I was suggesting. What did I come up with ? Jack shit! Nothing! Nada!

So, here’s what I propose we do:

– Compile free and open source how-tos, plans, designs, etc. on Disapedia. I have made a page for DIY equipment.

– I will go and interview Hotchkiss and his class, and write up more detail on how their open source project works.

– A meeting to share access hacks and start to add to that wiki page on Disape
dia.

– I’ll head up an effort to organize a really good disability/accessibility hacking booth for Maker Faire next year.

For the Access Hacks booth, I’d like to pull in:
– craft/sewing people for stuff like mobility device storage and mods with velcro and fabric
– metal working people
– electronics people (like the OneSwitch folks)
– Maybe invite Tech Shop and the Bay Area wheelchair stores to participate
– obviously, disabled crafty/makery people. I thought I could try to pull in GimpGirl and put the word out in other communities
– Flyers on how to open source your hack and make it free – license info, where to post, hook up with places like WikiHow.

This could make a super fantastic real life application for hardware/craft hacks. I would love to just hang out all weekend with a bunch of other people with disabilities and share whatever hacks we’ve already come up with. That in itself would be productive without even doing it at Maker Faire. I’d like an Access Hacks meeting around here and I wonder if people would host them elsewhere and then post tips on Disapedia. (I would like to use them rather than host a new wiki, but I’m willing to make an access hacks wiki if that’s what people would like.)

Please, leave feedback in the comments.

Code that isn't at all poetry, but that is structure & patterns

Happy Poetry Month! Rather than poeting, for the past few days I’ve been twiddling with code. It is much the same state of mind as translating, or basic composition, but for me at least, not quite poetry. It does require moving a bunch of words around, arranging them, and imagining their interpretation, organizing words in order to have an effect. For poetry or composition, an effect on a listener/reader, so you are imagining a logical and emotional state and the interpretation and effect of a person. For code obviously you are writing so that a machine will follow your orders perfectly; but less obviously you are writing for yourself in the future and for other future, human readers of your procedural pattern of thought. You are writing for your future (self or other) human, so they can modify and extend that code and put it to other uses. In other words, it has a bit in common with an oral or folk tradition. Repetition and patterns are good in poetry if you want to create structure for extension and improvisation.

So, just now I was doing some of my baby-Perl for some contract work. And the deal is, there are a bunch of users, and their accounts go through various bureaucratic steps, and through various work people and departments, some steps requiring others to happen first, for the account to become fully active. This is a fairly common situation for any institution. So, I had a Perl script that would take some command line options and then would do various things with the user and account data. As more people started realizing I could manipulate account stuff, and could generate reports, etc, they started asking me for new tasks. So, the hacky little script grew very quickly to a giant horrible tangly mess full of regular expressions that I did not understand anymore, 30 minutes after I wrote and tested them. A reg exp is a thing of beauty but it is not a joy forever. Instead, it makes my head hurt.

So I started about 4 times over this last month to rewrite that mess to make it easily understandable and extensible. I scribbled and thought on post-it notes so I could try to break down what needed to happen into chunks that I could move around & visualize, easier than in a 200 line text file.

It went kind of like this: use GetOpt::Long to tell from the command line what kind of report or change is required. Log in to several systems. Iterate over a range of account IDs in a big loop. Then do some http page getting and parsing. Then a lot of if else statements to see what command line option is turned on. Mixed in with some more tests and if elsing. Then again depending on command line option, do some other junk, write to some other web pages and outfiles. At the end of all that looping, write some more outfiles.

Ugh! You can see that any new capability meant that I had to do more page parsing and more reg exping, as well as thinking through all the logic of the whole if-else mess.

Today I suddenly realized several things. Speed doesn’t matter for this. I can set it going and let it chug away.

So, number one, for each user ID, just read in all the possible pages that have info on that account. It is only 5 web pages on 3 different systems. Read them in and parse out all their fields.

Number two, think of each account as having a state. There are 8 different bits of information that change account state, out of the 50+ possible bits of info. So, after parsing all the pages, look at the 8 pieces of information I care about, to determine the account’s state.

For things I then want to do, they fall into two categories. Reporting and state change. Reporting is easy. For changing account state, I can define for each case of one state to another; what actions it takes to change the account state. There are objects, and states, and transactions.

I have never really understood object-orientedness no matter how many times I think about it, and use and write code that is in theory, sort of object-oriented. It’s not like I get it now, but I get it more than I did.

Suddenly everything clicked into place and I understood how to write the code in a way that would be useful and elegant. I understood the root of the problem. It all fell together in a system. It looked like a pattern, like information that was beautiful. I know, it is a bunch of account data in a bureaucratic procedure. After years of being “programmer analyst” doing back end tools for university departments, I had to find beauty where I could. The “click” feeling means I look back on my month of sporadic attempts to write this program, and it looks like I was brain-deadishly trying to make something out of legos by gluing their corners together, when all the while I could have been snapping them together how they are supposed to go. But, before, I could not see the intersections.

So, just now I had the exhilarating (yet slightly shame-faced) feeling that I had just reinvented the wheel, or some basic principle of computer science that if I had any sense, I would have known from taking some classes. On the other hand, taking computer science classes doesn’t guarantee you know what you are doing or can build something that other people find useful & usable.

Caltrans evades legal responsibility for sidewalk ramps

Ah, California. Sometimes you come through with your sidewalk accessibility, your ramps and ADA compliance, and sometimes you just don’t. I opened up my issue of New Mobility magazine this morning over coffee to find a brief and horrifying news snippet. Caltrans is fighting the ADA. “CDR and other disability groups filed suit in 2006 demanding Caltrans meet obligations to provide accessible walkways and curb cuts.” Read more about it here: CDR vs. Caltrans. Here’s part of the horrifying bit, a quote from CDR president Laura Williams: “We are very concerned that they are going to use this as a challenge to the ADA itself, which then affects everyone nationwide, if they should prevail.”

Your tax dollars at work, as Caltrans wastes your money you paid to create great public transit, on legal battles to screw us disabled people who are ALSO TAXPAYERS.

In my own small town here on the SF Peninsula, it took me months just to get an answer about who was responsible for a stretch of sidewalk. And in part, that delay was because people tried to tell me that the county, city, or Caltrans might be responsible for my sidewalk corner. No one knew and there was no way to find out.

Here is at least one thing that cries out for a quick technological fix. Someone make a Google maps mashup that demarcates who is responsible for which bit of sidewalk and crosswalk. How hard could it be? Does Caltrans have the information available digitally? If so, they should make it available online. Here is the Caltrans site map. Can you find coherent information about ADA compliance, sidewalks, curb cuts, and crosswalks? Can you figure out how to find which sidewalks Caltrans “owns”? Can you figure out how to complain? I couldn’t.

Caltrans controls around 2,500 miles of sidewalk. They can’t fix them all at once, there isn’t the money or time. They haven’t surveyed their walks for ADA compliance, and they’ve had many years to do that work. But, worst of all, considering the practical realities, they don’t even provide a way for their users to report ADA problems, and they won’t take responsibility for their sidewalks.

It burns me up.

I am a happy and proud member of the super-awesome Flickr group !Rock That Disability! This morning’s realization that my own state, California, center of much disability rights activist history, is with my tax money funding a fight against the Americans with Disabilities Act. The very ADA that Barack Obama would like to support and extend; a politician who cares about the human rights of people with disabilities. I will be writing some emails to politicians this morning, notably my representative and Governor Schwarzenegger. But, I also created the Flickr group Inaccessible!. Here is its description:

A blog for photos of inaccessible places and spaces. Ever been frustrated at lack of wheelchair access, insane potholes in the sidewalk, stairs, badly configured bathrooms too small for wheelchairs, badly placed handrails, elevator buttons too high for you to reach? Snap a photo, label the place as clearly as possible, and explain why it is a barrier.

My hope is that this group will be useful to building owners and people who want to make their environment more accessible. It also helps those of us with disabilities to express our frustration and to record daily encounters with barriers to access. Documenting the problems may also help us to follow through and try to get those problems fixed by the people responsible for them.

I populated the group with a few photos I happened to have tagged already in my photo archive. Because sometimes when I’m facing a giant flight of stairs, a huge hill, a bathroom I can’t get into, or a museum where I can’t go with my kid to the exhibits, I snap a photo. Maybe 1 time out of 100 I bother to do this. But what if we all did it, every time, and built up evidence? If I document and label all the worst intersections, broken sidewalks, and so on?

I would love to see something good come of this outrage, something like Fixmystreet.com. I consider my own time and energy and expertise. I have done a gazillion BarCamps. What about an AccessCamp, for some web 2.0 love for disability rights activism?

Highly trained girl-monkey sys admin bait


geeking at the conference
Originally uploaded by Liz Henry

I was saddened and angered recently at a geeky gathering, to hear a very annoying and sexist story about women at techology conferences. A young man was talking to another guy and a couple of women who also looked to be in their 20s. He was laughing and telling a story with a tone of “Wow, listen to this hilarious amazing thing!”

According to this poor little dude, it is hilarious that it has become common that at sys admin and other tech conferences, big companies send women in undercover to do stealth recruiting. His story laid out how the big companies “specially train the women to sound like they know what they’re talking about”, priming them with lessons in the correct use of technical jargon. They send sexy women who are basically “high class call girls” to flirt with the valuable (assumed unquestioningly to be male) sys admins and programmers and get their information, and to figure out which ones are good and know their job. Then the Trained Monkey Fake Sys Admin Whores pass that information on to their superiors (also assumed in the story to be male) who actually know what computers are, for them to do intensive recruiting.

“Hahahaha!” laughed the young women at the party.

“Wow, hahahah!” laughed the guy listening.

“It’s totally true!” said the young spreader of poisonous, sexist, urban myths. “I even know guys who have slept with them!”

Oh for fuck’s sake. Let’s just undermine the legitimacy of technical women at conferences just A LITTLE BIT MORE with our messed-up “booth babe” stories, shall we?

If this even had a grain of truth to it, what would it sound like, framed differently? “Some companies send technical recruiters to technical conferences.” That’s it. There is nothing newsworthy there. I mean, DUH.

But, as soon as there are WOMEN in the story, it is given a misogynist spin, which is assumed to be hilarious and titillating and to make the listener feel superior. Because the technical recruiters are female, they are sluts, or “call girls”; definitely sexually available and exploitable. Because they are female, they are assumed in the story to be ignorant of computers, technology, sys adminning, and programming; any knowledge they DO have is “fake” because it is is artificial “training” given to them as a thin veneer just to mask their real goal which is sexual predation on the sys admins, run by mythical “big company” pimps.

I was super amazed to hear this crap coming out of someone’s mouth, at a party which was chock full of skilled, amazing, geeky women, and men who are sweet feminist allies. But, on the other hand, I was not amazed, because this is exactly the sort of thing people say all the time about, and around, technical women, or any women in male-dominated fields. It is part of the background of undermining and de-legitimizing women, that poisons the fucking air we breathe, that makes people assume we suck, that makes us women have to prove ourselves in every new professional context, to everyone we meet, that means we have to be 10 times better than a man in a comparable context before other people believe in our professional credentials.

Just think about that next time you hear a bunch of dudes arguing about why there aren’t more women in programming and engineering, and, quit looking for your biological explanations, and go check your own assumptions, and the kind of stories you tell and tolerate in your communities.

Annoyingly sexist framing of Google VP Marissa Mayer


Photo
Originally uploaded by thisgirlangie

As an inoculation to what I am about to expose you to, here is an awesome photo of some ubergeeks from the Google-sponsored Geek Girl Dinner organized by Angie Chang from Woman 2.0. From left: Sumaya Kazi (Sun Microsystems & The Cultural Connect), Katherine Barr (Mohr Davidow Ventures), Irene Au (Google), Rashmi Sinha (SlideShare), Angie Chang (Women 2.0)

By some quirk of fate, a copy of San Francisco Magazine arrived at my house today. If you’ve noticed this vapid glossy magazine for aspiring Not-LA and Not-NYC socialites, you will know why I was automatically tossing it in the trash. But there on the cover were the words “Google’s geek goddess”, and I had to look, knowing how annoyed I was about to become.

Oh, it was so much worse than I imagined!

According to SF Magazine writer Julian Guthrie, Google’s employee #20 and first female engineer Marissa Mayer is “not what you expect.”

What the hell do you expect? Who is “you”? Some drooling dinosaurish idiot who not only thinks the important thing about women is a mix of prettiness, girliness to the point of infantilization, sexiness, etc but who also thinks that “we” the readers of the article would expect a gazillionaire engineer-turned-corporate-executive to be some kind of Hollywood Geek Girl stereotype with unkempt hair who needs to take off her glasses and stop being obsessed with computers to become pretty.

Soooo how are we framing the opposite of what “we” expect? Mayer “looks Grace Kelly gorgeous, a tall, blue-eyed beauty with blond hair pulled back from her fresh face. She is much livelier than you might imagine, and her clothes are anything but humdrum.” This assumes “our” default expectations to be the opposite; female software engineers as humdrum, boring, un-lively, certainly not beautiful and maybe not blond.

You can see two assumptions set up here:
* Women who like computers are ugly.
* It fucking matters.

You know why it does matter? It matters because sexist and misogynist assumptions do still have a lot of power in our society. And we need to change that, by pointing out that misogyny and sexism are stupid, wrong, and undermine social trust and gender relations.

The article descends further into idiocy, still on page 1 of framing Mayer as a person and as a professional, by quoting some Valleywag posts calling her a social climber, implying that she got her job or position by dating Larry Page, and “using her looks”.

Guthrie quotes a Valleywag editor saying, “Marissa is surprisingly pretty in person. That in itself is a rarity in Silicon Valley, and you’d have to be naive to think that doesn’t color people’s views of her.” Great. This is a rhetorical strategy common to misogynist bullshitters: undermine a woman’s achievements by claiming her main “achievement” is being pretty, or worse, implying she used her sexuality to get a little dollop of fake power and status from someone Actually Powerful who deserved it. When powerful smart men are friends with other powerful smart men, those personal relationships aren’t framed as devaluing their talents and skills. But as soon as a woman has a personal relationship with a man, the power imbalance is assumed to be there along with a host of other assumptions about sexuality, the stereotype of a woman sleeping or flirting her way to her status. It’s tokenizing; it’s like suggesting women are only in tech because of Affirmative Action By Boyfriend. In other words, we are not “allowed” by history to have our own status. We only have status by proxy as given to us by men who have sexual access to us, real or implied sexual access.

I’ll list through a few more of the sexualized and sexist terms used to describe Mayer. Her “throaty laugh”, how she’s “the only blonde in a room packed with mostly dark-haired young guys”, she “acts goofy and girly”, has a “ballerina posture”. There’s a weird setup where Mayer is described as a geeky robot, “mechanical”, precise, unsexed, but then that unsexed-geek-girl stereotype is defused by her “personal passions” and “coming-out party of sorts for a new kind of Silicon Valley star.” That hypothetical ghost of a robotic passionless scruffy geek is contrasted with the girly, giggly, sexy, cupcake-baking, fashion-loving, non-threatening woman who sometimes shops for purses.

“Mayer is fiercely competitive. She wants to make the best cupcake, wear the prettiest dress, have the coolest penthouse.”

SIGH.

I think we can all enjoy cupcakes and fashion without being freaking defined by it. I’m not objecting to anyone’s hobbies of geektastic cupcakes, knitting, wearing pretty skirts made for super rich people, or whatever. I’m not objecting to femminess and the deliberate, or just automatic because that’s how we are, geeking up of things that are supposedly traditionally feminine.


me & Liza Sabater at SXSWi, photo by Rachel Kramer Bussel

BUT. The implication in articles like this is that women NEED a specially feminized presentation of self in order to prove that it’s okay for women to like computers. That’s completely stupid!

There is another problem in this article, and in the general pattern of media attention on powerful women in male-dominated fields. It’s isolation and tokenizing. An article will frame the tech world as if there is only one important woman. She is always presented as the Lone Woman in the midst of techie guys. Tokenizing! Context is important. And my own context, as a woman in this field, is that it’s full of heroic efforts of women in computing to make professional and personal connections with each other. Consider Mayer in contexts with other women:

* Webguild
* Grace Hopper Celebration 2006
* Blogher Business

Those images, for me, are much more powerful and meaningful than the one Guthrie paints of the Lone Blonde Chick at the party full of men. Journalists should not “disappear” women in tech by canonizing one saint who they love and hate, praise, objectify, and revile. There are a lot of us here!

To be overly generous, I would like to mention that after the first 3+ pages of utter crap, Guthrie did write a good, interesting, middle section to the article, which straightforwardly describes Mayer’s background in computer science, her interviews at Google, and her early work experience there, including the sort of oh so wacky “Nudist on the Late Shift” geek-culture stories about Wacky Startups that we can’t really avoid and that I do still enjoy hearing about and living in the midst of. So I’m not slamm
ing Guthrie’s basic competence as a journalist and writer, and the article is not all fluff; it’s way less fluffy than you’d expect from SF magazine, that society rag for the more droolingly idiotic of the rich and famous.) Then we hit some more stuff about being a party hostess and cupcake making, Mayer’s childhood doll collection and background in “precision dance team” which must be a lot like what in Texas was called “drill team” and meant cheerleaders doing dance; and more bilge about underneath her Geekitude and corporate executiveness Mayer is “still that geeky super-normal enthusiastic girl”. What? I’m still trying to decode what “geeky super-normal enthusiastic girl” means. The effect to me is of deliberate girlifying of a brilliant, competent, powerful adult, in other words infantilizing them in order to make them less threateningly powerful-seeming.

I can’t even dignify the paragraph about Mayer’s dating life with a quote; it was just dumb. FFS.

But the end! The end was the worst! “Does Mayer ever see herself going completely low-tech and focusing (professionally or otherwise) on art, entertaining, baking, or fashion? ” You know, what would have to be wrong in an interviewer’s head for them to ask that question? What the hell? Why would anyone ask that question of one of the most powerful engineers at an extremely successful company, a person with a couple of degrees in computer science and many years of experience in the industry? “Oh… just wondering… have you ever thought of forgetting about this lil’ ol’ computer thing and sticking to cupcakes?”

I can”t wait to hear what my colleagues on Systers, BlogHer, and Linuxchix have to say here. I was also thinking that as a response we could add some good detail to Marissa Mayer’s Wikipedia page.

Socialtext, and ongoing Wiki Wednesdays

I haven’t been posting here very often as my medical and disability issues got kind of intense. I went on short-term disability for a couple of months, and am going to stop working full time for a little while. While I’m leaving my job at Socialtext, I’m going to continue contracting for them on an occasional basis.

Working at Socialtext was an intense experience, less like drinking from the firehose and more like being blasted by a giant non stop river of information and communication. It was very interesting “ambient work.” I hung out with my co-workers on many wikis, on chat, irc, over email, and sometimes in person.

Tony Bowden, Casey West, and Dan Bricklin worked with me on an open source release of Socialcalc and on planning its possibilities, as well as working on open source licensing and legal issues. I was on call any time for Ingy döt Net to test his wiki hacks and help him debug, and Perl goddess Kirsten Jones was always around to help me with my questions. I got to hang out in Socialtext’s co-working space and have some great conversations with Adina Levin and Pete Kaminski, and especially appreciated Adina’s willingness to listen and to take time to act as a mentor. Chris Dent wrote so much great & thoughtful wiki theory and thoughts on software development; I just wish I had gotten to pair with him on a project, but maybe sometime in the future. It was great working with Jon Prettyman, Chris McMahon, Shawn Scantland, and Ken Pier on new releases, and any time I got to work with or hang out with Lyssa Kaehler, Zac Bir, Melissa Ness, or Brandon Noard it was a pleasure. Probably the nicest part of working at Socialtext, I mean besides the decadent hot tub parties, was getting to team up with Luke Closs, whose super clear explanations and agile coaching totally rocked my world. Seriously, I can’t say enough good things about the engineering, support, and QA crew at Socialtext.

Then, I think of how Socialtext basically paid me to spend time helping with things like BarCampBlock and Wiki Wednesday. The Wiki Wednesdays were especially lovely. It was kind of funny, because all the literary readings I have run in the past turn out the same way; an eclectic crowd of people who don’t know each other and wouldn’t otherwise have met, kicking around ideas in a laid back atmosphere — rather than big events that are lecture-style. I also really like to find interesting people who are not the usual suspects; who are total rock stars but in a small niche that is not visible to people who are rock stars in other niches. Anyway, it was through Wiki Wednesday (and sometimes through random co-working arrangements) that I met fun and inspiring people like Eugene Eric Kim, Jack Herrick, Eszter Hargittai, Bryan Pendleton, Betsy Megas, and Philip Neustrom.

Wiki Wednesday is continuing, run once again by Socialtext’s social media visionary Ross Mayfield. I hope that a good crowd of people from different wiki communities, platforms, and companies will flock to the event. Other local wiki events coming up: the Freebase User Group run by Kirrily Robert at Metaweb, which just happened, but another one is coming up in April. And then, a fantastic-sounding wiki event I haven’t been to yet, Recent Changes Camp, which will happen May 9-11 in Palo Alto, and which I hope will be as good as the past ones in Portland and Montreal.

If babies were all considered disabled

This morning I woke up thinking, “What if babies were treated as the disabled are treated?”

What if infancy was medicalized the way that old age is medicalized?

Pregnancy would be an embarrassing, extended disaster. It would mean a person was about to go down to the very bottom of our economic system. You’d be quarantined in your home by governmental order. In order to go out in public, you’d have to prove you don’t have a dangerous infectious disease that makes your stomach swell up. You’d get doctor’s signatures send in forms to your insurance company and the government to declare you were pregnant, and every couple of weeks you’d have to renew those forms.

Glossing over labor and delivery, let’s consider what happens when you’ve got a baby. It can’t walk! It can’t eat food! It’s disabled, poor thing. It needs special nutritional supplements that can only be prescribed by a doctor. It also needs a special device called a stroller which costs maybe five or ten thousand dollars. You’d apply through Medicare to get one. Maybe they won’t approve one for use outside the home! There’s stroller stores, especially online, but wow, would you buy a Bugaboo stroller that cost $5000 without getting to see it first and whether it would be good for your situation, or would fit in your car or whether you could lift it up? By the time your prescription for the “stroller” had been approved by doctors and you’d proved through several insurance company and social worker home visits that you indeed had a baby, and by the time the stroller arrived, your baby could walk. Oh, you could rent a basic stroller from a medical supply store for 10 bucks a day, but it would be MADE OF LEAD.

In some ways you feel that the doctors and social service agencies have a bit of an attitude that if they delay long enough, the problem will shift, and disappear. Just as they act like older people or people with disabilities are going to die soon anyway, so why are they fussing so much about having this wheelchair, or ventilator, or home health care? If they wait long enough, the problem will disappear.

Instead of this medicalized model of the distribution of goods and services, we have Babies R Us, giant stores full of shelves where you can try and buy all manner of highly specialized products for babies. In fact this industry is fairly new. It was created when companies realized that babies change their requirements and abilities every couple of months and that there were people who would buy all new junk for them. Instead of carrying babies in slings or on our hips and requiring that cars have seatbelts, we have 3 different sizes of car seat and a million varieties of strollers good for differerent ages. We have cribs and playpens and Pack-n-Play and Exersaucers and those bouncy things that go in doorways.

Disabled people, and older people, are a similarly lucrative market. The way the market is utterly sucks. There is no Crips R Us or Spazzmart where I can go browse the shelves of fascinating bright colored crap. INstead, I was at a sort of auto body shop warehouse wheelchair store, with a couple of mechanics who order stuff off the internet for me and who guard the knowledge of how to fix wheelchairs jealously.

You can order wheelchairs off the Internet these days but wheelchair stores haven’t change their model of trying to make a profit. And from what I can tell they are failing to make much of a profit. Or if they are it’s at the top and the store doesn’t reflect it.

Seriously, it’s as if we all bought our cars from the skankiest auto repair shops, and there weren’t really any sorts of customizations or accessories we could put on them. There wouldn’t be any auto parts stores. Right now, I can think of at least 3 big auto parts stores within a mile of my house, and every hardware store, Target, and drugstore has an aisle of junk to bling out your car.

I put my hope in the baby boomers; as they all age, they will expect to be able to cruise the aisles of the CripMart and get flowered cane tips and colostomy bags to coordinate with their power suits.

26 million Americans have a severe disability. 1.6 million people use wheelchairs, and I’d bet my boots that many more people would if they could: if using a wheelchair was shown as useful, cool, empowering, for real, and if old people didn’t have to jump through 20 million hoops to get decent ones that don’t weight a hundred pounds. Instead, older people limit their activities and hide their struggles, ashamed, and scared to let anyone see that they might need help, because our system of “help” is so demeaning, dehumanizing, and awful that they’ll rot in an armchair in front of their televisions for 10 years till they die rather than admit that they might need a walker. It’s not stupid pride. It’s a reasonable fear that they will lose whatever independence and autonomy they still have.

I was talking with people about this who argue that maybe the market is limited, so companies don’t think they can make a profit. But it’s not all that limited. There’s something like 5 million babies born every year, and look at that market in baby stuff. If you look at who’s elderly in the U.S. Census the numbers are completely crazy. And in fact… even if you assume that disabled and elderly people are not going to be able to afford to buy this stuff, they’ll have relatives who might be able to.

Having there be real competition to build and sell this junk will help bring the prices down. In 1984, there was no market for “mountain bikes”. Now there’s shops with them everywhere. Though I couldn’t find how many are sold in the U.S. in a year, I wonder how those numbers compare to the potential wheelchair market? My point is, someone is missing a giant capitalist opportunity.

How hard it was for me in the 90s to get my first wheelchair! On the advice of a social worker, I stole one from the hospital, the one I was in as I sat in her office crying and she told me she couldn’t help me because my diagnosis wasn’t solid. My second wheelchair, that I got from a fellow student: one with good insurance. The way that if you have a nice chair, other disabled people look you up and down and guess, “Car Accident?” because only people with good insurance can have nice wheelchairs, and good medical insurance is so very, very rare, while car insurance companies for some reason are likely to be more decent and pay up for wheelchairs promptly, covering the entire cost. The few decent wheelchairs that exist are passed from hand to hand, often through charitable foundations.

Ruth, at A Different Light writes very well about civil rights, human rights, and disability, for example in A Matter of Life and Death.

Then we have people who say they want to die because they cannot get out of their homes because there have been In Home medical equipment restrictions or they can’t afford medical equipment. Their wheelchair breaks and they can’t get another one so they are immobile. This leads to depression. Perhaps their caregiver is an aging parent who can no longer care for them – or dies. All of these changes make disabled peoples’ lives unmanageable and can make suicide look like a way out.

In the last week or so I read through all of Ruth’s archives on this blog, and through some of them on her other blogs. She makes many good points about the consumer model vs. the medical model: try here in Seeing advocacy as a tool and in On distancing from the disabled.
I realized over this past week how the medical and charity models are related — and how wrong they are.

Let people choose for themselves what they want and need!

If you would like to do a useful thought exercise, extend my stroller model to thinking about chairs and cars. People sit in regular chairs: office chairs, kitchen chairs, armchairs. There is no reason that they have to. You might argue if you were from another culture that it would be healthier if we sat on the floor or learned how to squat on our heels. (And they’d generally be right). Likewise, if we just walked places, or ran, or biked, we wouldn’t need cars to get to work. Yet… wanting to sit on a chair or ride in a car does not make a person “disabled”. But even people in dire poverty are often able to scrape up enough money to have a car and certainly to have chairs. If those things were only available to people who have the health insurance of the insanely privileged, our entire societal structure would weaken. I’d extrapolate this to say that if we made it easier for the disabled and elderly to get assistive technology and mobility devices, it would strengthen our entire society.