Thoughts on disability representation and images

I was thinking this morning about the problems of making images that somehow represent concepts of “disability” in general, activism around disability justice and solidarity, or just wheelchair stuff.

You may recognize the problem. It is a challenge to find cool disability related stuff. If you want 9000 boring variations on the blue disability parking / bathroom symbol, great. But we need to go way beyond that!

In addition to running a nonprofit (Grassroots Open Assistive Tech) and creating logos and cover images for my small press zines, I love stickers and posters and all that stuff. In my backpack and in the side pocket of my powerchair, I carry a little pouch of stickers to give away to people. Some are for my own projects, some are random, some tech related, some fun cartoons or animals for kids. And I like to have cool queer, trans, and disability related stickers to share too!

To that end I regularly go trawling through Etsy doing keyword searches like “wheelchair + punk” and see what pops up. “Cripplepunk” is remarkably fruitful! I especially love the dynamic, queer coded pastel knuckle tattoo-ed manual chair “crip punk” sticker from ChaosCripples, and really want that on a tshirt or an iron on patch!

head on, fists forward, art on a sticker, of a wheelchair user with knuckle tattoos spelling crip punk

This one is nice too! “Mobility Aids Are Freedom” from SnailTrailStickers!

art on a sticker of a rollator, wheelchair, crutch and cane, that says Mobility Aids Are Freedom

If you go do some image searches for “wheelchair user” most of what you find will be kind of boring. “wheelchair user punk” used to bring up ALMOST NOTHING but lately, has been kind of good! Some kind of cultural shift (and maybe a technical shift as well) happened for that to be the case.

It’s not like we haven’t been around! Witness this pic of me from around 1993 taken by my sister! There was a version of this pic also photoshopped by her to make it look like the wheels are on fire. Note my amazing, youthful wheelchair-given triceps! Anyway I was a punk in a wheelchair and I would have really loved to see any kind of representation at all.
photo of young liz in a cambered sporty red quickie in 1993, leather hat and gloves, also huge muscles wow

My own drawing skills are OK but have a finicky, scritchy, lynda barryeqsue aesthetic that is not always what I want in a sticker. So I had a try at AI generating images a while back and came up with the seed of the Burn This Press logo I’ve been using on the back of some tiny zines. I lost the prompt but it was something like “nonbinary genderqueer punk, doing a wheelie in a modern dynamic sports wheelchair with electric sparks flying out” (developed over many iterations of bad prompts with bad results). I got something close to the current BTP logo which I then got my sister to re-drew a bit for clean up, and then I did more edits to mess with the hair, neck, lap, leg position, and so on.

Have a look at the Etsy and other online shops where people are making this kind of cool art! Buy their stuff and support them!

I surely have blogged before to lightly mock the wheelchair users we see in murals. They are in a terrible hospital chair, pushed by someone helpful, and everyone is looking up slightly with a beatific smile for maximum Inspo. Barf me out!

(edit: I can’t find that post, maybe it’s in draft somewhere, but here’s an example from the mural by where the J and N Muni trains stop at Church and Duboce. Note the ridiculously transcendent facial expression of this lady despite that she is riding the world’s crappiest wheelchair)

(further edit, i am only mildly cranky about this and like to make fun of things and it is a pet peeve, don’t get me wrong, i also appreciate ANY sort of representation for disabled folks and wheelchair users in particular, because it’s so damn rare)

(Also also, as the CEO of Digression, adding that I can wrench my mind from irritation that the one wheely person in this giant, pretty good and weird mural, is in a crappy chair being pushed, and direct it to the actually good fact that the care worker can also use a representational shout-out? though this is a struggle because what I personally want is a wheelchair user who “looks cool”)

detail from a mural showing a wheelchair user looking oddly ecstatic

Another problem with disability activism images is trying to represent as nebulous and huge of a concept of disability in one image. Using a wheelchair as this symbol is super lame! j/k!!!
This is how you end up with somewhat awkwardly drawn cartoon people where one is in a wheelchair, someone has a white cane, there’s an older person, somehow they try to work Deafness into it, they will be several different races, someone is in a sari and someone in a headscarf, and so on. Usually they are standing awkwardly around together as if posing for a stock photo! Maybe with protest signs if you are lucky but more often they aren’t doing anything other than Representing. I love this, and it is SO HARD TO DO in a way that looks good, and has some actual solidarity and joy in it rather than coming off as totally cheeseball!

(NOTE: I HAVE POSED FOR THIS PHOTO OFTEN – on request – feel free to put me in your pic – yes, if I work at your company or speak at your event, I absolutely will be in the front row or in your web site photo about Diversity – fuck yeah (but maybe with a little eyeroll))

I think these images, while lovely and well meaning and managing to do Representation, can come off as kind of bad art, or maybe we can be less snobby and call it folk art style, but I wish for artists who can draw the anatomy of human beings more competently than I can, to have at it on stickers, murals, tshirts, posters, logos, you name it. I want some cool socialist realist art of this Representation Group! Some art nouveau dandy versions ! Be in a park! Go to a music show! Be playing dungeons and dragons! Be doing something, omg.

Really the main problem is that none of these Group Photo Representation images, no matter how nice, work super well as logos as they are complicated and you have to draw a lot of bodies and faces and a background. When they are the best (to my mind) they become much more like narratives than logos! And that is good actually! That means they are MORE TRUE.

Here’s a pretty good one I found while writing this article from a report called “Resourcing Disability Justice: Our Feminist Journey Toward Centering Disability Justice“! These disabled people are having an ecstatic experience while feministly weaving together, and also representing some kind of super punk-ass rhizomatic concept, in space, on top of a damn rainbow! You see that it is trying to solve all the problems I describe in this single image. It is OVERCLOCKED. Really quite a challenge. Actually, my deep respect to everyone who has tried to meet this challenge, and a shout out to this artist, Abi Stevens!

(Note this report title is ALSO doing the most! “Toward” implies a proper humility, in that you are not done, or objective, or definitive, you are adding your little yawp to the collective chorus over time! We aren’t even defining or creating, we are Centering it. It’s also so disability justice that it has to say it TWICE.)

group of disabled women and girls in outer space, on a rainbow, weaving something collectively and joyfully

Another option is to have something kind of abstract – but what ?! I like ADAPT’s burst chain, in this category! There are many that are just like, a shape, or some shapes together, for maximum safety and boringness and when I see those I always imagine the ten painful committee meetings that produced them via painful hashing through everything else I just described. Thus, you may imagine me for years muttering “Oh, look, a SHAPE” and snorting to myself, whenever I encounter these logos, a mutter and snort that should be taken to convey the entire contents of this blog post, but 30 years of it.

For GOAT I worked both with poking some AI generators and also paying a friend who is a graphic designer to walk through a bunch of these concepts. Rather than human figures I thought it might be nice to have cute, colorful little icons of tech things. That way we get the variety of cross disability solidarity and the idea of tech stuff. The DIY vibe that I was going for is like the whole earth catalogue, sierra club how-to, 70s-ass hand drawn illustrations you might have in a step by step DIY instruction. So, my human designer drew me a whole set of icons, and I am combining and using them in different ways. There isn’t really a canonical “logo” yet but maybe one will evolve as I play with these images! I went with a tablet or ipad looking thing for AAC, a stylized ear with hearing aid and sound waves, and so on. The gear and tools, rather than the people.

colorful hand drawn icons of a powerchair, wrench and screwdriver crossed, spool of thread and needle, robot hand shaking a human hand

I was also going to say a word about stickers and patches and posters. They are usually very hand made and “folk art” feeling, they may or may not have “good” production values ie they may look a bit shitty or like they were created by raccoons in a back alley. That is fine actually. But what we want in our punk stickers etc. is a clear message that is legible to both our in group (other punks) and maybe to a lesser degree to our out groups (especially if we are telling them to fuck off). There’s a lot more I could say about that!

And the point of having these cool ass stickers to give to people is to bring joy to them unexpectedly – there is something so nice about, another disabled person complimenting my stickers a little bit wistfully and then I pull out a whole sheaf of stickers they can pick through & take! People really light up! Of course it is always interesting to see what they will choose when offered a wide selection! Bringing this tiny bit of happiness and crip joy to random strangers is also useful activism to do in daily practice.

So many shows!

I am trying to remember all the shows and concerts I’ve been to in the last couple of months, all of which I had resolved to blog about. Maybe I can go backwards in time a little and this is going to be a mix of punk shows and opera. It has been a fabulous summer of having TICKETS. (I LOVE TICKETS!!!)

cameron diaz saying TICKETS! I *LOVE * TICKETS

Last week was for opera as I went with my friend Lisa the music critic to a winery in Napa to see Abduction from the Seraglio, which was fluffy and kind of adorable in a beautiful setting. The two sopranos stood out to me the most (which must be common in amateur enjoyers of opera) as Brenda Rae awed me with her technical skills & I also just really dug Krista Pape’s voice which never, ever sounded strained. The guy singing Osmin also had a spectacular bit in the last act. I’m not very familiar with this operam but Lisa mentioned they cut some bits out for length. The other thing of note was that the singing was in German while the talking bits (not really recitative, just talking!) were translated to English. At intermission we met some adorable young people who liked my hair and the stickers on my powerchair. The one in the suit reminded me of young Annalee; she and her companion were both so cute and liked that I gave them stickers and zines. I think we may have also met one of their aunts (their “chaperone”).

We then stayed for a super fancy dinner and some great musicians. I realized we were surrounded by people who like, own entire wineries, which was a bit weird but interesting, and that everyone at our table was drinking tremendous amounts but was still coherent. I did taste some of every kind of wine offered (3 kinds through the various courses, plus port, plus another one) but could not actually drink all of it, or began to falter midway through glass 3. All of the wine was delicious. I was pretty tipsy on the way home!

Another opera jaunt to the Italian Cultural Institute, with Astrid and our friend Dracaena Wolf to see the sneak preview for the upcoming Ars Minerva production of La Flora. Swooned as usual over Celine Ricci’s description of research in dusty libraries or laboriously scrolling through microfilm. BTW if you get on the Italian Cultural Institute’s maling list they often have great events for free. The songs by the cast of La Flora were good ! I’m looking forward to that show in November! Also I am burning to someday get to play on a harpischord. I could see the guy playing’s hands and I could imagine playing what he was playing as accompaniment – I am sure I could even sight read it, slowly and badly – We had dinner afterwards at Cafe Macaroni (or something?) which was delicious and so instantly homey to me (Sicilian family side of things) I wonder why I do not go more often to that neighborhood for actual italian food. I will be back to that spot for sure tho. Dracaena played me some short clips of her music, which was wild – doing very strange stuff technically with rhythmic variations and i think different … scales? that was over my head but i could glimpse and yet also being clearly danceable. I can’t wait to hear more from her.

Mosswood Meltdown was great as usual – lots of low key lying on our picnic blanket feeling happy – drinking weak margaritas, smoking dope, and admiring everyone’s outfits – I especially loved Go Sailor and their pop punk joy – Pansy Division made me all starry-eyed – and the B52s of course were fantastic performers. I also bought a black and white checkered sweatshirt and a ridiculous neon pink and green mesh crop top.

Team Dresch show was probably the highlight of my summer show going (so far) as they were perfect in every way – it was (like i mentioned with Hanna’s book talk) like seeing them as mature adults rather than flailing, fellow damaged kids in their early 20s when I was also – Donna Dresch 100% admirable as she rocked out and competently messed around with the guitar pedals (I was right at her feet). Kai(a?) Wilson on point – Jody Bleyle very adorkable in a pokemon hat – entire dynamic of the band beautiful. Oceanator was impressive – more to the rock side of “punk” which I could appreciate though it is not my preference for genre – and Eddie & the Heartbeats touching folk punk that sometimes made me tear up as bits of the songs and stories made me think of my own stories – At some point I accidentally imposed (?) on someone who is some kind of scene queen of SF punk, but she was nice and helped my friend Gina get a chair and made way for me right at the front and also went ot get me a drink, implying it would be the work of a moment as she knows the bartenders, then miraculously reappearing with my beer – I have forgotten her name but maybe it starts with an M. She had an entertaining back story of being a fucked up girl in her early 20s and being hired by some specific (beer?) company to buy people their “first” beer (Black Star?) and she had a corporate credit card to do so and so was Very Popular at all the early 90s lesbian bars of the entire Bay Area. Also before that show I was way too early by accident & ended up inviting a girl named Tessa (“girl” but … probably only a bit younger than me) who loves robotics (Maybe teaches it) to get ice cream, and we had slightly too sweet but delicious “instragrammable” artisanal ice cream sandwiches before the show, but then I lost her to the smoking patio and she left early. I like Bottom of the Hill a lot as a venue! Lovely.

Commando, charming emo noise band Godgifu ( who kind of made me think of cheerfuler Bliss Blood/Pain Teens) , and Boyswitch at the Ivy Room – Boyswitch was TIGHT and great performers. I bought their cassette tape and all their merch! I love Commando and am always there to cheer on Lynnee’s poem about Prince – and their metally funk goodness & chaos in general – and feel kind of stabbed in the heart in a good way from Juba’s incredible poetry & rapping – A great show. You should BUY and READ Juba’s excellent book Son of Byford. A great poet with a far-ranging mind, my favorite sort of complicated poetry.

There is more but that will have to be it for now. All very short because I want to catch up a bit to the Now.

Rebel Girl and the Human League

My sister and I went to see Kathleen Hanna talk about her autobiography, Rebel Girl, last week. I recommend it! She was interviewed by poet, musician, and zinester Brontez Purnell and that was a joy because they had such lovely friendly chemistry and were able to laugh and enjoy themselves.

What a story – that Brontez was one of, as he describes it, “the 5 total riot boyzz in the world” who were writing letters to Bikini Kill and getting answers back from Kathleen. She described his 1993-ish letter, accompanied by a selfie he took of himself on the school bus, and how she had it taped up over her desk for the next 10 years. Write to your heroes everyone! They may like it! Then years later his band was opening for her band and now they are friends! A fairy tale that I love so much. I will likely review his recent book Ten Bridges I Have Burnt in a different post, since I bought it at the talk but have not read it yet.

It shouldn’t have been surprising to find Kathleen is tremendously funny. I had this reaction seeing her age up into a mid 50s person who is happy and has a secure life who deals with the intense trauma of their past with wry humor and is hard as nails but also soft as fuck and able to let it hang out and tell her stories and have a different kind of creative freedom where you get to explore your art while also — shocker — impossible — being supported. Maybe it sounds a little arrogant but that is how I feel about my life trajectory and it was so good and moving to know she is in a good place with her bands and singing and writing and her Beastie Boys husband and their loved and cherished child.

I did not know but also probably should have if I thought for 5 seconds that she has some also similar experiences being a person who other people report their trauma TO. By talking about rape and harassment you become kind of a magnet, you have freed others to talk about their traumatizing experiences and they want to tell you about it. Like the boxes of riot grrrl zine mail I was getting (and still have in the basement unsorted, unarchived) while still super fucked up in my early 20s from girls just a bit younger than me – it can be hard to take and she had to do that in person while having that level of indy fame where people make a lot of assumptions but you are desperately trying to scrape $40 together for medical care and eating dry ramen noodles and working at a strip club while you are ill as hell. My point was that when you talk about fighting rape & harassment you become the respository of everyone’s worst and hardest stories, and that is a hard load to carry no matter how much you feel honored and are willing to do the work of it. I vibed with all of this.

Of course I could talk about riot grrrl shit for fucking ever but that can wait.

Loved her joy in figuring out recording and mixing stuff (much of that, later on, in Julie Ruin era).

Loved the Kathy Acker stories both about being told no one listens to poets – better to be in a band — and about being smacked with a challenge to feminist essentialism (which I don’t 100% agree with actually, but it sounds like it was good for Hanna to be taken seriously & challenged by Acker.)

You can think, well what if Kathleen Hanna and so many more of us could have made our art without all this abuse and trauma and constant harassment? What if we could have support and love from family and have friends who don’t rape us and people who support our artistic careers without grossly hitting on us every fucking 5 seconds ? WHAT IF. But you cannot eat your heart out over it. & just hope for the youth to be MORE OK or at least to have that love and support and freedom.

Instead of eating my heart out I just feel tremendous respect for all the punk rock women making their music and expressing their feminism against all the things that made it difficult – poverty – racism – family – gross men – addiction & alcohol’s pull – hostile media – And so on. They did it and they survived (or didn’t) and it gives me immense strength just to think of them.

(I still miss you, Johanna Lee.)

I’m also 100% ok with her telling her own story about herself. This isn’t a collective story written by everyone who was involved and it isn’t trying to encompass everything that happened. It’s quite hard to make a coherent narrative out of a life, even one’s own life! I also liked the style of the short vignettes (which I have also been trying out.)

I hope it is immensely (further) healing for Kathleen to talk about her book and her life on stage in venues where she is respected and listened to and celebrated as an artist and for her whole self.

I enjoyed her stories and the book. She left out countless assaults and rapes I’m sure (which she joked about on stage) And I read with some sadness but also interest, about “Susan” who I instantly knew who it was, and I’d link but, What the actual Fuck, apparently there is still shit you can’t talk about? Of course it is fraught but it was interesting to see Hanna frame that interaction as encountering someone who she could not deal with because of their intensity and over-familiarity and having repeated mental health meltdowns on the bedroom floor of someone who didn’t actually want to let you into their house. However I was kinda sad to see her throw shade on “Susan”‘s writing and zine output, which I thought at the time was great and still love for its raw energy and realness because it spoke to me. I always appreciated “Susan’s” zines, mail, and mutual distro activity. At the time I did not know about the ridiculous and horrible problematicness of their behavior and their claims. The information about how it went down was not super visible to me either at the time – a little bit thru zines but I only really got it a few years later once we had web pages and then i forget who explained it to me (pre-blog.)

As gossip comes to me over the years I continue trying to unlock levels of understanding about things that affected me and my art and friendships even tho I was incredibly peripheral to those things. Why must it be so mysterious. But then I can SO easily imagine the queer anarchist collective meetings, or the personal arguments and angst, or whatever, that probably went into the non-links in this non-entry: https://zinewiki.com/wiki/Riot_Grrrl_Press Though you can get closer with this thoughtful post by ciarra.

there was also a lot of really interesting stuff about REDACTED & her crew. the book didn’t get into all the race controversy that happened after REDACTED wrote in her zine about the racist antebellum “one-drop rule” & how it is possible that she may have a black ancestor & so she can speak on behalf of all people of color everywhere–basically turning into a denier of privilege & positioning her identity in a big sick game of oppression olympics in which she can do no wrong. but it did kind of edge in that direction & shared a bunch of other ridiculous shit REDACTED did that was pretty similar.

it made me think about all the ridiculous arguments i have had with people over political things–things that sometimes seem like pointless internecine in-fighting, especially in retrospect. it made me think about how imperfect riot grrrl was, but in a way that didn’t really make me feel sad. it made me think more about how these girls were just muddling along, trying to make something out of nothing, doing what girls do, & because they managed to concoct this historical movement that has created such an intense feminist legacy, all the fights & snap decisions that didn’t seem so huge at the time, are being documented, & then they become evidence of the fractiousness that has plagued feminist movements since the inception of feminism.

WHY MUST OUR HISTORY CONTINUALLY DISAPPEAR. AAAAAAAAUGHHHHHH.

(It is because, the more marginalized your group is, the more vulnerable/more precarious everyone’s situation is so there is more at stake if you reveal the problems you will all be attacked personally in the worst ways and your internal / personal problems used to represent your entire category of people.)

Once I tried to trace what “actually happened” (as if that is possible) with the ending throes of the Combahee River Collective and whoooo. It’s none of my business on most levels. But it is interesting because of the way the dynamics are so similar to other groups who do amazing things and how they do not always last for a long time because Reasons.

It is so fraught to realize that sometimes the people you are THIS close to ideologically and personally are also the ones you cannot stand to be near, maybe they are just that bit of extra fucked up or chaotic that means they will drag you into their worldview or their own mess. Or you realize (like I did with “Susan”) that their racism is real and super harmful. I mean, we all want to “fix this mess”. Sometimes we can’t do it together I guess! I’m glad that “Susan” seems to have a more stable life now too. I am also extremely glad I was not close enough to any of that to be anywhere near the actual drama. WHEW.

In comparison, Hanna makes an attempt to talk about her own and white punks’ racism and the harm it did. Her big example is when she co-hosted a forum about undoing racism without realizing at all what was about to happen, which was white women’s tears to the max to the point where all the women of color left the event by the end except her very upset black co-host. There are many lessons there and one is probably, know how to just stop an event like that in its tracks. Like disrupt it or tell off your own audience or just full out end the event in the middle. As I get older that is part of what I think I may have learned or am learning. Sometimes things that seem good or well intentioned need to be stopped or destroyed, because they are so full of shit that allowing them to continue under your watch, is harmful and you’re complicit. “BURN IT DOWN.”

ANNNNNNNYWAAAAAAAAAYYYYYYYY

I promised some Human League commentary in this blog post. I was randomly listening to their first (?) album this morning in the shower after reading all the way through Rebel Girl in my pajamas, and I realized how much I appreciated their most famous song when it was new, because of how it wasn’t the usual fucking thing of a man complaining about a girlfriend who broke up with him and doesn’t appreciate him with an extra helping of “veiled” threat. Here is my freshmen composition essay about it! (I taught freshman comp briefly and read many a hastily tossed out song analysis! Why not.)

In Don’t You Want Me, which honestly is a bit insipid, but whatever, we all know the song — the dude has his say – he claims he discovered and “made” her in some way (assuming a musical career or something similar) – Then the threat. “I can put you back down too” and “we will both be sorry”, disturbing! He doesn’t accept that she is breaking up with him, and even tells her she doesn’t know what she wants, a total denial of her agency. So far, par for the course in pop songs and movies and books and like, everything. (This is why I hate most movies by the way, along with all the rapey fear bullshit and more general hetero/sexism/gender essentialism. I don’t need to consume any more of that toxic shit!)

But then the song totally redeems itself by Susan Ann Sulley giving our former waitress and now successful (artist) a voice in this!

I was working as a waitress in a cocktail bar
That much is true

Already, I’m happy because she instantly makes it clear she has a different version of this story! He doesn’t have a lock on the truth!

But even then I knew I’d find a life on my own
Either with or without you

Yes! Tell it! She also wasn’t pathetically waiting around for a man to come “discover” and “make” her! She had ambitions and plans and knew what she was doing! Thank you Susan Ann!!!!!!!

She acknowledges they had some good times together and she still has feelings towards Mr. ExBoyfriend, but…

But now I think it’s time I lived my life on my own
I guess it’s just what I must do

No argument, not a lot of explanation, no room for argument, just a clear message that it’s over and she is moving on.

I found this heartening and refreshing in the 80s. A woman could just break up a relationship and move on because it’s what she wanted to do. Duh! The end! (We hope, despite Mr “I made you, I can destroy you” making his gross threats.) It seems like a low fucking bar to set for one’s basic humanity.