anchored and expanded

My morning book (besides finishing a 1950s Dickson Carr Dr. Fell novel set in a theater) is let the heart hold down the breakage by Maureen Owen who is high in my pantheon of favorite poets. I picked this book up and a co-authored travel one in Seattle at Open Books, and some other tiny magazines, so pleased to riffle through the entire store in search of something I was not allergic too and didn’t already have.

let the heart has what I want, like a sort of guidepost, in the obvious life stage way and in its poetics – the floatiness I love in Owen’s poems and the feeling of freedom over the page – but anchored in daily life without a gimmick or any plonking.

If I can bitch for a minute about a thing I don’t like – I’ve written it up before in a tiny book of critical essays called Hot Air – it would be the plonk or the “hmmm” moment of a poem that says two obvious things and then wraps itself up in a smug little knot and then everyone in the room goes “mmmmMMMMMmmmm” and nods. Oh fuck I hate it! And even more when it’s like, “oh there’s some flowers on my living room table and then i thought about how my dad was emotionally repressed”. (Sorry not sorry) I think this catches people who are technically competent (D. would say “Workmanlike” ) and sit down to write a poem and are casting about for a subject or who have picked the subject like a class assignment and are trying to draw it and then add a title (the ending lines of the HmmMMMMmm poem) that baldly say the moral of the story, in case you missed it.

Anyway Owen avoids all that.

I also feel a skepticism of the tendency (including in myself) to write about beautiful things without being anchored in daily reality – like utopian communities and manifestoes where you know someone (not the author) is cooking scrambled eggs for 20 people and cleaning up afterwards, or like loving Walden without keeping the women in mind who supported Thoreau with domestic labor – Though we hardly know whether to deplore Thoreau’s lack of practical living skills, or debunk his debunkers I still can’t think of him without muttering “pies. laundry.” as grumpily as if texting it to someone complete with those grim full stops at end of line.

How do we write about giant feelings that trickle into every corner of ourselves, and seem indescribable? We know everyone can look at the clouds or trees and feel something and novels wind you up in the characters’ heads so that your own feelings are evoked, or you have the flash of empathy for the fantastical scenes & state of mind of the story. And in poetry my aim is to express something or describe something I can only express in this way, to evoke it in a reader or listener and also as a poet looking at the world I try to disrupt and expand my own consciousness, to open it to many things. And then I want to give other people a glimpse of that (or maybe at the core just be able to read it again myself and remember the intensity and complexity of feeling, or thought, I was mustering up.) If you are feeling, and also knowing things, and aware, and also doing things? That’s a lot to cram into a small space !

let the heart sets the scene of a diary and care work – big feelings, like, buckle up, we’re going in.

The poem early on titled “Mom” pitches me right into Owen-world, we are anchored in reality in the flip flops, the tender care as she shades her mom, the pines are maybe shading similarly but they are napping like Mom, they are carer and cared-for by the poet’s awareness.

Like, we have all stared at the beautiful motion of pine trees in the wind – at least I like to think we have – This admiration and wonder most lately expressed by the impulse to point your phone camera up and snap some photos, checking over them greedily to see if the magic has been caught in your representational net – Does it just look like a tree from below or is the feeling there, does it carry the contagion of art? I love people doing this and their aspirations and dreams and the attempt.

so we are in the moment expanding our minds not to encompass more (that is so possessive and presumptious) but to be aware of more. tuning into a wide channel. with the floating over the page language and spacing and lines that free my mind as the reader (and as a poet too) – the breaths –

I’m wishing Carmen weren’t dead so I could send her this poem and really the whole book.

When Michele was here and we talked so intensely about her mother and were writing snippets for her memorial and M saying , this is what my mother would like, but all her accomplishments are not my mother, really, to me – and I was thinking about what she was to me and knowing a lot of her harsher (cruel, damaged) aspects but also my deep impression of her as a brilliant person looking for that big pond & big scope wherever she could find it with fierce ambition – in science and computing and genetics and culture and music. i searched for poems that M might accept as having the feel of her and settled on this from Amelia Earhart,
At breakfast the question of nuclear weapons in space

Now the voices were faded they sang to her Her own
name in bits Underneath 2556 miles of water whistled
shore tunes it's soft clapping a comfort & a horror
The plane is the point at which the fog & the sea would meet.
A koan is a puzzle that cannot be answered in ordinary ways.
All my
Electrons Lord! all my protons neutrons leptons
mesons haryons all my Gravitons! "this will be
the secret of my disappearance A massless particle
is a particle of zero rest mass all of its energy is energy

of motion"
Then I was so pleased M. got it and agreed it was perfect, but we also then realized it was not right for a poem in a memorial booklet to be read aloud to a group of miscellaneous people in assisted living and that that memorial was for her dad and her and other family but in that setting was mostly for the other residents and a more understandable bit of poetry (Joyce Grenfell) would be best for the context.

Just as that crowd never knew V. as the complicated and beautiful high flyer she was, the poem would also fly over them and just be confusing. But to me and M. it was perfect, and comforting, and helped us feel seen and like V. was understood and seen.

The HmmmmmmMMMMmmmm of shared understanding, and songs and rituals, are useful and important for sure.

Grenfell’s poem, and I still want to slam it as a hallmark card of a “poem”, UGH SORRY, at least helps us all agree that yes, death sucks and we are sad, and yet sucky things are all the time, and we still should find happiness. Nothing to argue with there honestly. So I feel a tension between knowing what serves most people best and my own abstractions & kind of being up my own ass in an only liking the poet’s poets way, which I really can’t help. We can fly ambitiously like AE while knowing she also washes her dishes and makes coffee and is a real person, grounded.

What is a poem FOR – there can be many answers!

Back to let the heart hold down the breakage. The qualities of a diary are beautiful to me (the world split open, right?) Daily experience – physicality – the world of over the counter drugs, used kleenexes, bacon, while swooping back and forth in time and over lifetimes and having the holograph of the person you knew over time (and the imagined person they were before you knew them) build and build on itself till you want to explode.

What Owen is doing in her book is letting much more of the sadness in, acknowledging things that are hard, accepting the work in front of her (one of my main principles in life despite also being a sort of escape artist) whole heartedly. I see in my own life people who have done intense care work being more than a little traumatized by it and having difficulty thinking about it, sharing it, but then it spills over. I appreciate the work to hold it (the work and the trauma, or the feelings, and yes the beauty in it) and integrate it into the consciousness of everything ELSE. To me – this is a perfect example of the poet’s hunger for wisdom & the fruit it bears.

Bad inventions: The upside-down chandelier hat!

I thought of a good bad invention yesterday with my nephew as we studied the vaulted ceilings in my parents’ condo. The upside-down chandelier hat!! While you are right side up, it just looks like a large fancy hat with sparkling decorations heaped on top.

BUT!!!! When you are ready for a formal dinner, simply hang a trapeze over the dining table. The hat-wearer needs to get up their and hang by their knees upside down on the trapeze, causing the hat to unfurl. The light source could be powered by a battery pack or, optionally, one side of the trapeze rope could be an electrical cable so that the hat can plug right in!

Voila – so elegant!

The sounds of a park day

I had such a lovely time this afternoon in Dolores Park just loafing around. It was a glorious warm day, one of those days when I know it will be extra warm because in the early morning the sky was blue instead of foggy. I saw an adorable punk wedding party having a little picnic (I gave the bride some zines). It would have been fun to interview them and write up their wedding small town newspaper social reporter style but I suddenly worried that would be too intrusive. However if you know the punk wedding party, connect me please so I can write that funny social column news story.

a tall person in a plaid punk looking suit, someone dressed in black, and someone in a froofy bridal veil but ruffled hot pants instead of a dress, in the center median of dolores park

Acrobats, maybe an entire circus school, having their practices on the lawn by the tennis courts. A guy playing decent blues guitar not too far away. Little kids rolling in the grass and doing cartwheels. Tiny dogs drinking from the special dog drinking fountain. People in very short shorts. Mild beer drinking in a laid back way. Lots of small picnics and people lying on the grass. An old hippie guy in a tie dye with a mushroom shaped money bucket (selling weed and shrooms).

I like the sound of all those humans together and the distant shriek of seagulls mixing with little kids laughing and calling to each other. It makes me think of being a kid on Narragansett Beach (or Bonnet Shores but really more Town Beach like because of the crowds)

On my way to the J train stop at the corner of the park I ran into the girl from my Buy Nothing neighborhood group who (around the election time) posted to say she wanted to do a nice thing for random strangers, and also wanted to practice with her new sewing machine, so the first five people to respond who have women’s pants with inadequate pockets, she will come by on her bike, pick up the pants, sew better pockets into them, and bring them back.

Besides the beauty of this idea and its multifaceted layers of thoughtfulness, and the awesomeness that my rainbow unicorn pants now have pockets big enough to hold my phone and keys, there is another, maybe unexpected layer. Every time I tell the story of this pants pocket sewing girl to someone, they love it and are blown away and make a resolution to do something even half as cool and creative to put something positive into the world. I think because it is strikingly achievable, and also obviously something anyone would be pleased by (at least anyone who asked for it). Big problems are hard to fix so we need to have ways to take heart in small ways.

I told the lady waiting at the ramp the pocket story as we admired her sleepy infant who was gnawing at his own wrist and pointing at the trains passing the other way. “You know what’s messed up,” she said. “HIS pockets are sometimes bigger than mine. He can’t even walk. What does he need pockets for?”

It is one of the perks of wheelchair use, that you get to hang out with all the stroller pushers and their cute kids. Either on the ramps or at the front of the bus!

I do love this city <3

Thoughts on disability representation and images

I was thinking this morning about the problems of making images that somehow represent concepts of “disability” in general, activism around disability justice and solidarity, or just wheelchair stuff.

You may recognize the problem. It is a challenge to find cool disability related stuff. If you want 9000 boring variations on the blue disability parking / bathroom symbol, great. But we need to go way beyond that!

In addition to running a nonprofit (Grassroots Open Assistive Tech) and creating logos and cover images for my small press zines, I love stickers and posters and all that stuff. In my backpack and in the side pocket of my powerchair, I carry a little pouch of stickers to give away to people. Some are for my own projects, some are random, some tech related, some fun cartoons or animals for kids. And I like to have cool queer, trans, and disability related stickers to share too!

To that end I regularly go trawling through Etsy doing keyword searches like “wheelchair + punk” and see what pops up. “Cripplepunk” is remarkably fruitful! I especially love the dynamic, queer coded pastel knuckle tattoo-ed manual chair “crip punk” sticker from ChaosCripples, and really want that on a tshirt or an iron on patch!

head on, fists forward, art on a sticker, of a wheelchair user with knuckle tattoos spelling crip punk

This one is nice too! “Mobility Aids Are Freedom” from SnailTrailStickers!

art on a sticker of a rollator, wheelchair, crutch and cane, that says Mobility Aids Are Freedom

If you go do some image searches for “wheelchair user” most of what you find will be kind of boring. “wheelchair user punk” used to bring up ALMOST NOTHING but lately, has been kind of good! Some kind of cultural shift (and maybe a technical shift as well) happened for that to be the case.

It’s not like we haven’t been around! Witness this pic of me from around 1993 taken by my sister! There was a version of this pic also photoshopped by her to make it look like the wheels are on fire. Note my amazing, youthful wheelchair-given triceps! Anyway I was a punk in a wheelchair and I would have really loved to see any kind of representation at all.
photo of young liz in a cambered sporty red quickie in 1993, leather hat and gloves, also huge muscles wow

My own drawing skills are OK but have a finicky, scritchy, lynda barryeqsue aesthetic that is not always what I want in a sticker. So I had a try at AI generating images a while back and came up with the seed of the Burn This Press logo I’ve been using on the back of some tiny zines. I lost the prompt but it was something like “nonbinary genderqueer punk, doing a wheelie in a modern dynamic sports wheelchair with electric sparks flying out” (developed over many iterations of bad prompts with bad results). I got something close to the current BTP logo which I then got my sister to re-drew a bit for clean up, and then I did more edits to mess with the hair, neck, lap, leg position, and so on.

Have a look at the Etsy and other online shops where people are making this kind of cool art! Buy their stuff and support them!

I surely have blogged before to lightly mock the wheelchair users we see in murals. They are in a terrible hospital chair, pushed by someone helpful, and everyone is looking up slightly with a beatific smile for maximum Inspo. Barf me out!

(edit: I can’t find that post, maybe it’s in draft somewhere, but here’s an example from the mural by where the J and N Muni trains stop at Church and Duboce. Note the ridiculously transcendent facial expression of this lady despite that she is riding the world’s crappiest wheelchair)

(further edit, i am only mildly cranky about this and like to make fun of things and it is a pet peeve, don’t get me wrong, i also appreciate ANY sort of representation for disabled folks and wheelchair users in particular, because it’s so damn rare)

(Also also, as the CEO of Digression, adding that I can wrench my mind from irritation that the one wheely person in this giant, pretty good and weird mural, is in a crappy chair being pushed, and direct it to the actually good fact that the care worker can also use a representational shout-out? though this is a struggle because what I personally want is a wheelchair user who “looks cool”)

detail from a mural showing a wheelchair user looking oddly ecstatic

Another problem with disability activism images is trying to represent as nebulous and huge of a concept of disability in one image. Using a wheelchair as this symbol is super lame! j/k!!!
This is how you end up with somewhat awkwardly drawn cartoon people where one is in a wheelchair, someone has a white cane, there’s an older person, somehow they try to work Deafness into it, they will be several different races, someone is in a sari and someone in a headscarf, and so on. Usually they are standing awkwardly around together as if posing for a stock photo! Maybe with protest signs if you are lucky but more often they aren’t doing anything other than Representing. I love this, and it is SO HARD TO DO in a way that looks good, and has some actual solidarity and joy in it rather than coming off as totally cheeseball!

(NOTE: I HAVE POSED FOR THIS PHOTO OFTEN – on request – feel free to put me in your pic – yes, if I work at your company or speak at your event, I absolutely will be in the front row or in your web site photo about Diversity – fuck yeah (but maybe with a little eyeroll))

I think these images, while lovely and well meaning and managing to do Representation, can come off as kind of bad art, or maybe we can be less snobby and call it folk art style, but I wish for artists who can draw the anatomy of human beings more competently than I can, to have at it on stickers, murals, tshirts, posters, logos, you name it. I want some cool socialist realist art of this Representation Group! Some art nouveau dandy versions ! Be in a park! Go to a music show! Be playing dungeons and dragons! Be doing something, omg.

Really the main problem is that none of these Group Photo Representation images, no matter how nice, work super well as logos as they are complicated and you have to draw a lot of bodies and faces and a background. When they are the best (to my mind) they become much more like narratives than logos! And that is good actually! That means they are MORE TRUE.

Here’s a pretty good one I found while writing this article from a report called “Resourcing Disability Justice: Our Feminist Journey Toward Centering Disability Justice“! These disabled people are having an ecstatic experience while feministly weaving together, and also representing some kind of super punk-ass rhizomatic concept, in space, on top of a damn rainbow! You see that it is trying to solve all the problems I describe in this single image. It is OVERCLOCKED. Really quite a challenge. Actually, my deep respect to everyone who has tried to meet this challenge, and a shout out to this artist, Abi Stevens!

(Note this report title is ALSO doing the most! “Toward” implies a proper humility, in that you are not done, or objective, or definitive, you are adding your little yawp to the collective chorus over time! We aren’t even defining or creating, we are Centering it. It’s also so disability justice that it has to say it TWICE.)

group of disabled women and girls in outer space, on a rainbow, weaving something collectively and joyfully

Another option is to have something kind of abstract – but what ?! I like ADAPT’s burst chain, in this category! There are many that are just like, a shape, or some shapes together, for maximum safety and boringness and when I see those I always imagine the ten painful committee meetings that produced them via painful hashing through everything else I just described. Thus, you may imagine me for years muttering “Oh, look, a SHAPE” and snorting to myself, whenever I encounter these logos, a mutter and snort that should be taken to convey the entire contents of this blog post, but 30 years of it.

For GOAT I worked both with poking some AI generators and also paying a friend who is a graphic designer to walk through a bunch of these concepts. Rather than human figures I thought it might be nice to have cute, colorful little icons of tech things. That way we get the variety of cross disability solidarity and the idea of tech stuff. The DIY vibe that I was going for is like the whole earth catalogue, sierra club how-to, 70s-ass hand drawn illustrations you might have in a step by step DIY instruction. So, my human designer drew me a whole set of icons, and I am combining and using them in different ways. There isn’t really a canonical “logo” yet but maybe one will evolve as I play with these images! I went with a tablet or ipad looking thing for AAC, a stylized ear with hearing aid and sound waves, and so on. The gear and tools, rather than the people.

colorful hand drawn icons of a powerchair, wrench and screwdriver crossed, spool of thread and needle, robot hand shaking a human hand

I was also going to say a word about stickers and patches and posters. They are usually very hand made and “folk art” feeling, they may or may not have “good” production values ie they may look a bit shitty or like they were created by raccoons in a back alley. That is fine actually. But what we want in our punk stickers etc. is a clear message that is legible to both our in group (other punks) and maybe to a lesser degree to our out groups (especially if we are telling them to fuck off). There’s a lot more I could say about that!

And the point of having these cool ass stickers to give to people is to bring joy to them unexpectedly – there is something so nice about, another disabled person complimenting my stickers a little bit wistfully and then I pull out a whole sheaf of stickers they can pick through & take! People really light up! Of course it is always interesting to see what they will choose when offered a wide selection! Bringing this tiny bit of happiness and crip joy to random strangers is also useful activism to do in daily practice.