Disability Technology Foundation plans

I gave a short talk at the Aaron Swartz Day Hackathon about my new project, Disability Technology Foundation. Its goal is to open license assistive tech of all kinds; to archive and share plans on how to build your own helpful devices, from pen holders to powerchairs. We’ll be aiming to provide an easy pathway for inventors, especially disabled inventors, to freely share the tools they have created with the world. Then, others can try out these devices, share bug reports and troubleshooting or repair tips, and adapt and improve the original designs.

Here’s the talk description:

Disabled people are often locked into using proprietary hardware and software that’s ridiculously expensive, over-regulated, and difficult to maintain or modify.

E-bikes and scooters have great ecosystems for production and maintenance. Yet power wheelchairs, though they use many of the same components as e-bikes or scooters, are locked into a world where they’re unhackable, unfixable, and unrepairable by their owners.

Disabled people do hack their wheelchairs and other assistive technology, including software, hardware for mobility, screen readers, voice banking, AAC, and gadgets to help with limited dex. Meanwhile, engineering students, disability studies folks, and other academics, regularly invent useful stuff. The problem is, most of this stuff does not make it out into the world for practical use.

The time is right for disability justice to combine with F/LOSS! We can build an open ecosystem for assistive tech!

DTF, or Disability Technology Foundation, is Liz’s new venture. DTF will serve as a pathway for assistive technology inventors, hackers, wheelchair modders, etc. to open license their work. That way, they can share it with the world, so that other disabled people can have free access to DIY and low cost plans to build equipment — and make it work for them.

A translation from a while back

Every once in a while I think of this poem by Nicanor Parra, and want to find my translation again. So here it is! I think it is weirdly compelling and it also makes me laugh even if it is a somewhat bitter or wry laugh. There’s a lot in there.

Frases

No nos echemos tierra a los ojos
El automóvil es una silla de ruedas
El león está hecho de corderos
Los poetas no tienen biografía
La muerte es un hábito colectivo
Los niños nacen para ser felices
La realidad tiende a desaparecer
Fornicar es un acto diabólico
Dios es un buen amigo de los pobres.

– Nicanor Parra, 1962

Sentences

Let’s not throw dust in our own eyes
The car is a wheelchair
The lion is made out of lambs
Poets don’t have life stories
Death is a collective habit
Kids are born to be happy
Reality tends to disappear
Fucking is a diabolical act
God is a good friend to the poor.

Awesome Foundation Disability, 69th winner

The 69th winner of the Awesome Foundation Disability grant is Jessica Elaine Blinkhorn with the project SPANKBOX!

NICE!!

SPANKBOX is a photographic installation that depicts individuals with physical disabilities in hypersexualized poses and situations. SPANKBOX puts the power back in the hands of those with physical disabilities by granting the audience permission to look, fantasize, and question disability and sexuality in a safe environment. It also allows people to see themselves for who they really are by answering the questions presented by those whose images hang in the SPANKBOX gallery.

And the part I really love is, after the question period of the exhibit:

During the performance portion of the installation, audience members will have their words read back to them to assist the viewer with realizing their internalized prejudices and exclusionary practices.

Both celebratory and confrontational! I’m so curious how this will go! And I hope the travelling exhibition will make its way to San Francisco! They have a further fundraiser going to help with future touring.

Hard to believe it’s been five years of Awesome Foundation Disability. I have learned a lot from reading the grant proposals every month. I hope that these microgrants with a low barrier to entry help change the lives and give all these creators, inventors, teachers, artists, and others a real boost!

Day off

I always feel like I am taking too much sick time and people will be judging me but I looked at this year with my manager and I had taken 8 sick days and 6 vacation days. Something is wrong with how I am thinking!

I immediately took this Friday off to relax a little extra.

Some writing, maybe doing some garden work, going to Noisebridge, and I will get a massage. Wish me luck on getting someone who will pay attention to my need for gentle, basically geriatric, massage!