Top Ten Useful Mobility Gadgets

Here’s my top picks for useful hacks for cripples.

Think about getting some of these for older people who might need help but don’t want to be seen as disabled. Seriously, once they try a bathtub rail they’ll never go back. The boomer generation has not really tapped into all this. I don’t even know what you call the generation before boomers… but they’re hopeless, they won’t use it till they’re losing it. I dunno, maybe if you make it all tie dyed or decorate it with hippie beads, or make that junk look like a ridiculous fancy sports car. Gen X will be so much easier, they will go for the duct tape and stickers as I have. We’re cheap that way. Pretend it’s a skateboard… whatever…

And now, the top 10!

1) A good wheelchair

Beg, borrow, or steal a really nice, light chair. You could always boot someone else out of theirs if they’re more crippled than you are. I like my Quickie x-frame but I’d rather have a nifty Ti-lite, Zephyr, or Boing. If you are in one and you see me watch out because I might kick your ass.

2) Fancy walkers

Walkers with a built in place to park your butt and a bike basket on the front. I’ve never had one but they appear to rock. There is a certain panache to the old-school ones with tennis balls on the back legs. But the new-style walkers seem way more useful for shopping or standing (sitting) in line. (Although I always want to slap people who har-har and comment that they wish they could sit down in line too. Hey, dumbass, want to sit down? Just sit on the floor then, nothing is stopping you, no need to comment on my wheelchair…)

3) A reacher/grabber

Any of them are okay, but I like one with a textured gripping claw. I can pick stuff up off the floor with my 3-foot long robotic cyborg arm! I can get coffee mugs from off the shelves way up high!

4) A bathtub rail
Lumex makes a great portable one, very easy to install. It’s like a rubberized vise grip that grabs onto the rim of your bathtub. It makes getting in and out of the bathtub easy and not scary.

They seriouly market this shit all wrong. It looks hospitally and geriatric. They need to be all like “COOL-ASS GNARLY FREAKY BATHTUB RAIL”. And it needs to have flames.

5) Fancy canes

Oh there are such fabulous fancy canes out there. Flowered ones, scrolly gold ones, and most of them fold up in segments. Mod it up with a velcro strap to keep it closed. There is even a vibrating cane! File off its sharp handle edges for a little more ergonomics in your vibrating fun.

6) Pockets

Get pockets in your clothes. Seriously now! A guayabera is very nice – a Cuban shirt with 2 top and 2 bottom pockets. Why get up. Just carry your junk all around with you. Photographer vests are good. What the hell, who cares if they’re ugly, they’re useful.

7) Duct tape and stickers

Huzzah, duct tape! Modify anything! Build pockets for your crutches or a cup holder for your wheelchair. Then, decorate them.

8) Phone holster

Wear your phone on your belt. Don’t put things in your back pockets any more. You have to lean forward to get them out of your pockets. Screw that.

9) The perfect wheelchair shopping cart

No one has invented this yet, but I thought of two ways to do it.

– Easy-install clamps that would go from the lower front of the chair to the lower back of a child-size shopping cart.

– a lap basket that clamps onto the chair’s sides, so it hovers just off your lap and the weight doesn’t rest on you.

10) Booze and painkillers

I just had a seriously painful nerve conduction study where I got like 20 zillion electric shocks to my leg with needle electrodes and this taser thing and they also wiggled the needles. While I was crying and screaming and naked and covered in snot. Now I can’t walk even more. I swear to god. I’m already crippled, now I have to be tortured? Pass the bottle please. Again.

I’ll just go drool over the chairs on that Colours site again… thanks…

No, wait, I have some honorable mentions for useful gadgets. Shelves, heating pads, electric blankets, sippy cups, trays, and keys on straps around your neck! Add more in comments!

Talking with the city about ramps

After I sent a bit of an email blast to everyone in the city government I could think of who might be able to help, I got a super nice response. A city technician, Charlie, called me and left voicemail; I called him back and we met half an hour later outside my house. There could not be a nicer, more competent-seeming person. It was very reassuring.

We walked around and looked at the main obstacles to places I go often: the grocery store, the school, and my path to the train station. With 6-7 curb cuts, it would be workable. There was a large locust tree in the way of one ramp location. Charlie, who is also something of an arborist, said that the tree was around 5 years from dying anyway; it is split in a way that means a main branch should come off, and its core is dead. So it might should be cut down anyway. Still, losing a tree makes me sad.

I learned many other interesting things from Charlie as we walked (and rolled) the route and discussed tangential things like the city’s history, street names, clues to former land use and the evolution of streetscapes.

The curb cuts cost the city about $5000 each.

As of last year, the standard curb ramp is a wide diagonal, heading both directions. It has texture to warn visually impaired people that a slope is about to happen. It has those yellow bumps at the edge to warn that you’re about to be in the street. The texture also directs where the diagonal is, so you know not to go out into the exact middle of both intersections, but to choose one or the other. Behind the ramp, across the sidewalk, there will also be a sort of raised back curb, which signals the sidewalk’s edge.

I found some excellent guidelines here on the Department of Transportation federal government site. It’s especially good at explaining the different needs of different people; how power vs. manual wheelchairs have conflicting requirements that also conflict with cane/walker/crutch users and visually impaired people. It has a very cool table of best practices for access. Also, the illustrations of dismayed wheelchair users in section 7.3.7, Change of grade, are quite funny.

The streets Charlie and I looked at are fairly old. It is not a “Centennial” neighborhood quite, but I think more like the teens… My own house I believe was started in 1910. The many resurfacings since then mean that the street is raised in the middle from the curb and gutter, so the ramp construction will take the crown and gutter slope into account.

Charlie mentioned my other request for a stop sign, and said that Traffic and Engineering might take a while with that, so he would have his crew construct a base for it in the ramp, and put a cone over the base. If the stop sign doesn’t happen, they grind down the base and fill it in. If they don’t do that prep work, then someone will “drill a hole in my ramp” and possibly weaken it structurally.

Not to mention Charlie’s other mission of training rednecks not to do u-turns on the curb ramps and not to use them as driveways. The weight and the sheering force does major structural damage! Now you know. It would never occur to me to do a U-turn onto a sidewalk. I did not ask about skateboarders…

The city contracts its sidewalk construction and repair out to a company called J & J. They have to have a certain amount of work to be done before the contractors will come and do it all in a batch. This had a particular name, but I have forgotten it. The contractors are in the neighborhood now, working, so might be able to do this; but might need to schedule it in October instead and to do that Charlie will likely have to find another batch of work to go with it. I am sure there’s no shortage of things to be done.

The money for this comes from a pool of money for ADA improvements that the federal government gives to the city each year. I don’t know how much there is total. Charlie described a project he was on that provided sidewalk access from Edgewood Road all the way to the Senior Center on Roosevelt. Not bad!

The alleys on my block also limit access to the main road behind our block, Jefferson. It is actually quite funny because there are very nice ramps and crosswalks all on Jefferson, but they lead you up onto a section of sidewalk that ends in a giant curb at the alleyway. I am not going to worry too much about the alleys. If I want to use the mailbox at that corner, I will drive to it or go across the street and down the block and across the street again.

Charlie and I also discussed the driveway slope. That is something I could pay half of and the city would pay half, to fix. For now I am thinking to just put a big heavy board there as a temporary fix so that my car will stop bottoming out and so that I can get down the driveway in my wheelchair.

Then we went into discussion of trees and City Trees. The city used to recommend crepe myrtles, and then banned them, and now doesn’t mind them again, but since they push up the sidewalks the same as a big shade tree, they recommend you just go with the big shade tree. It helps houses be more energy efficient and it makes the city nicer for everyone. Big trees need 6 feet of planting space between the curb and sidewalk, and medium ones need 5. Our planting strip is narrow; about 2.5 feet. So, on streets like ours, the city does the 50/50 cost split, creates a sort of bump or bend in the sidewalk, moving the sidewalk closer up towards the house. The right of way is actually much greater than most people think, so, about 5 feet into our front yard is actually public land or right-of-way.

That was about 1 hour of my morning, and I took another hour to write it up. Time well spent.

I am very relieved that I don’t have to fight harder for this. Also, I was grateful not to have to explain myself, the ADA, my medical status, or anything else, to Charlie, who took my right to use the public sidewalks as a given. What a great public employee and great person to work with.

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Apple store sued over ADA issues

Wow, I wonder why sue Apple in particular? Because most of these same things have happened to me in … well… pretty much every single store or public place I’ve been in.

ON the other hand I was unusually ticked off at the Apple Store in Palo Alto a few weeks ago. A “genius” was trying to fix my computer and I was insisting on trying to watch (as, if not using a wheelchair, I would normally do.) Another employee came by and told him he could pull out a little stand from the side of the counter. He complained.. .and they argued about it in front of me without talking to me. She showed him how to pull out the counter, and I started helping her do it and set it up. The dude acted put out. Then, at some point, he needed to plug into an ethernet cable because part of the problem was that my wireless software wasn’t working. And he couldn’t manage to find a cable long enough to reach to the little pull-out desk extension that I could see from my wheelchair. So we fought about that for a while, I went behind the counter and craned my neck and was rudely kicked out by a manager who said it was against store policy. When I tried during the *next* problem to come up that day to get him to pull the wheelchair accessible desk out again, he refused because it was inconvenient for him and blocked the way.

I am routinely in elevators with inaccessible buttons, or have to put up with someone else’s humiliating fussing over their wires or chairs or boxes stacked in a hallway to the bathroom… and so is every other disabled person I’ve ever talked with.

This bit made me laugh, “they were unable to reach products or service desks at the retail shop”. This is also true nearly everywhere. I accept that part and will just ask for help if I need it.

This part made me happy:

“The women said they are more interested in changing the store to better accommodate their disabilities than punishing the Cupertino-based company”

Well, yeah. And sometimes you have to push it, and sue, or bring down the law in any way possible, or change doesn’t happen. That’s how we got the ADA and equal-access laws in the first place.

Politely talking to a manager doesn’t always work. Picketing doesn’t either. Using the law might. It is legitimate activism.

So I respect their lawsuit and wish them luck.

But wait. Read the comments on the article. Check this one out:

“First, it seems unlikely that a company as astute as Apple typically is would miss something this important. They do have blinders, but not usually like that. ” That’s so annoying. Oh, well, it’s impossible to imagine that some poor yobs in a retail store, even a nice new fancy one downtown for a slick computer company, might be rude and discriminatory. Or that there are flaws in the ADA compliance in the building or the store setup, such as the wheelchair buttons or inevitable boxes in the hallway to the bathroom.

Bah. Screw them… no, sue them. Until they shape up. The disabled protesters who occupied the SF Federal Building 20 years ago didn’t do it just for fun… they did it so we can use the law to change things.

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Hacking City Hall

My experiences with activism, and also my peripheral awareness of politically savvy friends, taught me some things that aren’t automatic knowledge. In this case, I would like a 4-way stop sign at an intersection near my house. I would also like curb cuts — sloping ramps from the sidewalks to the street — at the busy intersections along my street, between the grocery store and the many apartment buildings and the two schools. And incidentally… to my house.

If you saw me in the street with my 7 year old at 8:15 am this morning you would understand a little bit better. It is hard for me to find a place to cross the street. The curbs and driveways are steep. Some driveways I can go up and down, and some I can’t, especially if I’m tired and hurting. Meanwhile, my kid wants to walk next to me, but I won’t let him, so I’m trying to herd him by shouting, and keep us both caught up, and teach him traffic awareness and how to cross the street, but while I’m in the street and we are separated by parked cars. Giant Hummers and SUVs driven by people talking on cell phones fail to stop when they see me, even when they’re at stop signs, and they blow past me at 40 miles an hour while I’m out in the middle of the road going past parked cars with people getting in and out, parallel parking with vans full of kids. It’s a nightmare because the drivers are careless and distracted and ill-tempered and inconsiderate. Because we don’t have school buses in this district, everyone has to walk or has to drop off their kids on the way to work. The police circle the block, giving tickets to the worst offenders.

So, what to do? I need to be able to cross the street in my wheelchair! At an intersection! With my kid!

I looked up some addresses on the city web site and wrote a couple of emails months ago. When I realized that didn’t have any result, I figured I’d go in person to City Hall and ask questions. Procrastination ensued. I continued wheeling my wheelchair in the street whenever I needed to get groceries.

After three days of walking my son to and from school during periods of very heavy traffic, I lost patience with the situation. A few years ago, I watched my friend Elaine work the machinery of the city, and her position as president of the Moms’ Club, to get a stop sign at a busy intersection that was between her house and the local playground. It benefited everyone in the neighborhood. I saw her do very similar things to get shade structures and bathrooms in some of the local playgrounds! But if it were not for seeing her go through that political process, it wouldn’t have occurred to me to do what I’m doing now.

city hall

So! I went to City Hall. I asked at an information desk who I should talk to about sidewalks, ramps, and stop signs.

Step one. I explained briefly what I was looking for at the information desk. The information desk person told me to go to Planning.

Step two: The guy at the Planning desk told me to go to the Public Works building. I asked him more pressing questions, and he responded that maybe I could talk to someone in Engineering, but that would not help and the people responsible were in Public Works (across town.) Since those were the people I wrote to in the first place who didn’t respond and I didn’t trust his information and I didn’t want to pack up my wheelchair and drive across town and unpack myself into the wheelchair again, I told him I was going to go upstairs to the big sign I could see that said “City Manager” and “City Attorney” since I suspected there was some more direct path to action. He seemed mildly perturbed. I smiled with sharky politeness.

Step 3: On the way to the elevator, I told the information desk person #1 (nicely) that the person she had sent me to didn’t know what I should do next.

Step 4: Upstairs, an information desk or reception person for the City Manager seemed to know what I was talking about and what to do. She looked up some information online, and wrote down a name and phone number and email of Rich, the Traffic Engineer, and his assistant Peter, who were just downstairs next to the Planning desk I had gone to in Step 2.

Step 5: Someone came to talk with me at the Maps and something-or-other desk after I waited a few minutes. I gave my two-sentence summary of what I would like. She asked if I had an appointment to speak with Saber. I said I did not, but I would like to wait and speak with anyone who could explain the next steps in the process to me. She said things that indicated everyone was very busy and went away. I waited.

Step 6: An engineer, Brendan, came out to talk with me. We went over to a low desk that was pleasantly wheelchair accessible, with a large, lightweight computer monitor that swivelled around. I explained to Brendan, and showed him my map of the 3 blocks between the grocery store, my house, and the school. On it I circled the places I wished for curb cuts, and the intersection that I think needs a 4-way stop instead of a 2-way stop. I asked Brendan what I should do next to request these things from the city, through official channels.

(Here is where I would not have known there *was* a way to do this sort of thing, if not for the local Redwood City Moms’ Club and its email list, and my friend Elaine.)

(I would like to point out the many steps before this actually productive step; Expect delays, and uncertainty, and people who don’t know what to do next or who to refer you to; Don’t get mad at them, but keep patiently asking different people until you hit the good one who will say, “I don’t know, but let’s go find out.”)

Step 6, continued: Brendan listened intently to my explanation. He said that I should do separate requests for the stop sign — for which there was a known procedure — and for the curb cuts, which no one understands, which take longer, and which will cost a lot more.

Then, Brendan he explained what I should do and what would happen next. I should write a letter to the Senior Engineer, Saber. I gave a feral grin and whipped out my computer. There was wireless. I wrote the letter and showed it to Brendan across the desk. He said it looked okay. I cc-ed the letter to one of the school principals and to my housemates, the only people on my block whose email addresses I know offhand.

Then I took notes on paper for what he said next. Here is what will happen and what I should do:

– Write a letter proposing the stop sign (done!)
– Write a letter proposing the curb cuts.
– The city will respond within a couple of weeks (someone is on vacation)
– Engineering will order a traffic analysis, just from the fact of my request letter for the stop sign. They will put those tube things across the street and do traffic counts, and I think they’ll do a pedestrian count as well.
– Meanwhile, I must get signatures from the people living at the four corners of the intersection. Brendan called up an application that uses Google Maps, and we talked about how some of the buildings at the corners were single family and some were apartments and some were duplexes. The more signatures from those addresses I can get, the better.
– Also meanwhile, I must get signatures from people within a 1-block radius of the intersections.
– Brendan was aware that the neighborhood has many Spanish-speaking and Guatemalan/Salvadorean/Southern Mexico-native-language-speaking immigrants, so he advised me to make my petition bilingual and also warned me that people might be wary of signing things for various reasons.
– Meanwhile, a letter will go out from the City to everyone on the blocks near the intersection to explain the traffic analysis studies.
– Then, the engineer makes a recommendation to the City Counci
l in a staff report.
– A public hearing will then be scheduled for the City Council to discuss the stop sign.
– It is important for people who want the stop sign (or curb cuts) to come to the meeting, because if only people who are opposed come, it might sway the council.

Brendan explained other issues in excellent detail. He called up fles on his computer, and swivelled the monitor around to show me the screen. The main thing we looked at was the list of criteria that the city considers in its recommendation: how many cars must flow through the intersection in an 8 hour period, but the ways around that as well; pedestrian count in smaller time units is considered along with average speed of cars going through the intersection. That was interesting! And useful! Brendan said he would find out if he could email me that document, and gave me his card.

We discussed strategy for the curb cuts a little bit. He mentioned again that they were quite expensive and he had never seen anyone request them, and so there might be a bit of confusion as well as reluctance from the city. But that there was probably money for it somewhere. “Well, I think there has to be, because of the ADA,” I said in a friendly way. I hoped that would indicate my total willingness to work through their process, but would show that I am aware there are legal rights involved here, and laws that specify things like sidewalk accessibility. While I don’t think we have to go there, it seems good to at least mention the law.

I have some good ideas. IN addition to pounding the pavement for signatures, I could go speak to a middle school class at both schools, and perhaps enlist help from a social studies or civics class. I could explain the process I went through, and get some older kids to knock on doors and get signatures. Then I will not have to do some much physical labor, and a bunch of kids will learn something about local political processes and how to effect small changes.

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In which I am cranky and grateful about access in Chicago!

(I wrote part of this before BlogHer but forgot to post it!)

Anyone other people with disabilities going to BlogHer, by the way? I have not tried to mobilize to find out, but I’m wondering.

I am going to be able to get around town pretty well with regular taxis. My wheelchair folds up and fits in a car trunk and I think my hotel is close (though I have not actually checked! ) My main concern is that sometimes I just need to lie down somewhere. And I am fine with getting out of the chair and getting on the floor for a nap, which tends to freak people out. “OMG are you okay! Do you need help getting up! Did you fall?”

***

So, at BlogHer, the access was more or less okay.

The conference center at Navy Pier was very spread out, which means it’s exhausting and sometimes time consuming to get around. For example, there was no bathroom on the same floor as most of the panel rooms. The first time I needed the bathroom, it was hard to find one and I went way off in the wrong direction, and then had to take an elevator to it. Plus, you’d have an event on one side of the conference center, and then another event on the other side, separated by a giant crowded hall and two elevators.

I loathe Moscone Center for this reason as well. It is just Too Big and spread out. WisCon, in contrast, is in a hotel that perfectly fits 800-1000 people. The elevator problem is still there, but the exhaustion of moving around a huge space is eliminated!

Buildings in downtown Chicago had worse access, on the whole, than ones in downtown San Francisco. There were more tiny custom-installed lifts, and less ramps.

Lifts suck because they are almost always locked or not working or both. They’re loud, conspicuous, fussy, isolating, and clunky, and often they’re installed in the backass end of nowhere of the building while your friends are all going somewhere else, either because it doesn’t occur to anyone to keep you company or because they’re not allowed in the tiny awful lift.

The main problem, though, is that they’re kept locked and turned off. I flounced around Chicago telling building managers and security guards that it was illegal to keep the lifts turned off and locked. I don’t know if that’s true! But I can’t imagine that it’s not. It sucks, whether it’s illegal or not. I’ll go look it up and edit this entry later.

I ran into the “just two blocks” issue a few times. Someone would tell me somewhere else was just a couple of blocks away. It is always a mistake to believe this! It ***never*** is. Instead I found myself braving traffic and curbs and wheeling uphill 12 blocks over cobblestones, chain link fences, bricks, shark teeth, hot lava, and paths made of swords and darkness. Next time I will have prepared much better, with maps, and more phone numbers of taxis.

The big hotels were halfway okay. I became totally furious in the W Hotel when there was a ramp down from the lobby to the bar, but the ramp ENDED IN STAIRS. What the hell, people! I bitched. And rather than listen to anyone I told the hotel people to go away while I hobbled down the steps. I can totally do steps but it’s somewhat painful and after all day sitting up in the chair, I was not in the mood. It is awkward, and people stare, and I’d rather they stare at me and think “Oh Cool” while seeing me in a confident moment rather than seeing me limp and lean. Not that limping is bad mind you. Just that I was NOT WEARING MY PITY SHIELD that evening.

So then at a super fun fancy-ass dinner with a gazillion bloggers I had to swear my way into a dark pantry closet with some manager with a key while all the other employees and various random people stared and thought “Oh look the crippled chick is going to go and pee…” And was vastly annoyed and told them to leave the damned lift ON… with a light on… and with signs that say lift this way and bathrooms upstairs with a nice blue and white disability access logo.

Screw them!

I won’t even go into the Tale of the Sushi Restaurant and the Security Guards and the Building Lift and Chris Carfi helping me up the stairs! GAH. But I was grateful to the nice busboy who shook his fist at the non-working lift and who repeated my “fuck you!” that I yelled up the stairwell at the totally not-there security guard with the mythical lift key.

At City Centre hotel in contrast, I spoke to a polite manager once… and she was sympathetic. And the next time I came back to the hotel, I found this:

BlogHer

THE KEY in the lift!

That was so exciting, and it has never happened to me that a polite complaint has resulted in a policy change of this kind!

It was heartening beyond the happy convenience of being able to pee, get food and drinks, and talk with people upstairs when I wanted to… at my convenience… without fuss or frustration or delay.

Thanks, nice hotel manager!

BlogHer - nice hotel manager

About a week before the conference I think Elisa asked me if I knew any other bloggers with disabilities who would be there and what the issues might be. She was worried that I would not be able to ride the shuttle buses! I appreciated that concern. But the issues are sort of more complex than that!